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Aug 31, 2024

Why Is the Ileostomy Opening So Small?

This topic is about understanding why the opening of an ileostomy is small and why people with ileostomies often have to be careful with their diet. A person who recently had ileostomy surgery is curious about these issues, especially since the natural connection between the small and large intestines rarely causes blockages. They wonder why surgeons can't make the ileostomy opening wider to allow for a more varied diet without the fear of blockages.

Here are some insights and advice on this topic:

1. Anatomical and surgical realities:
- The bowel is pulled through a fixed hole in the abdominal wall and cannot expand like it does inside the body, resulting in a narrower opening.
- Rerouting the small bowel involves sharper bends and can lead to kinks. Post-surgery adhesions might also restrict the bowel's natural movement.
- Some ileostomates have lost additional parts of the small bowel or have conditions like Crohn’s disease, ulcerative colitis, or strictures, which can further narrow the digestive passage.
- Blockages often occur upstream at bends or scarred areas rather than at the stoma itself. A too-small skin opening is uncommon.
- Since the output from an ileostomy is mostly liquid, a large exit diameter isn't necessary. Surgeons focus on ensuring good blood supply, protrusion, and appliance fit over a wide opening.

2. Eating and experimenting:
- Chew food thoroughly and try foods several times before deciding they are off-limits, as tolerance can change over time.
- Foods high in insoluble fiber, like nuts, corn, popcorn, raw vegetables, fruit skins, and dried fruit, can cause clumping and blockages. Some people can handle them well, while others cannot.
- Many long-term ileostomates eat a wide variety of foods without issues. Success varies individually and often depends on the absence of adhesions or strictures and the number of surgeries.
- When reintroducing high-fiber foods, keep portions moderate and mix them with easily digestible items to reduce the risk of blockages.

3. Fluid management and output consistency:
- The output is usually liquid, but eating starchy foods or soluble fiber, or timing fluids after meals, can help thicken it for easier management.
- Drinking large amounts with meals might cause liquid to bypass food, leading to watery output initially and thicker material later. Spacing out drinks can help maintain consistency.
- Everyone has different foods that thicken or thin their output, so keeping notes and adjusting your diet accordingly can be helpful.

4. Perspective:
- Lists of "forbidden foods" are just guidelines. Many ileostomates eventually return to a full diet.
- Rerouting the bowel provides a life-saving stoma but removes the large intestine's reservoir and grinding functions. No surgical design can fully replicate these, so diet experimentation and adaptation are essential.
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