This topic is about someone who has been living with a J-pouch for 13 years and is now preparing for its removal due to Crohn’s disease spreading into the small intestine and throughout the pouch. They are anxious about the upcoming surgery, especially since their first surgery led to a long hospital stay. They are looking for advice and reassurance from others who have been through similar experiences.

Here are some helpful pieces of advice and insights shared by others:

1. Stoma creation and positioning:
- Request that the surgeon places the stoma away from belt or pants lines and ensure it protrudes at least 1 inch to help with appliance sealing and prevent skin irritation.
- Make sure an enterostomal nurse marks the best site for the stoma before surgery and is available for post-operative care.

2. Surgical and follow-up details to clarify:
- Confirm whether the surgery will be open, laparoscopic, or robotic.
- Discuss whether the entire diseased intestine will be removed or just part of it, and if the anus will be closed.
- Ensure you have confidence in your surgeon and understand the follow-up schedule.

3. Managing Crohn’s progression:
- Talk to your gastroenterologist about long-term management. Ask about biologics or newer medications that have been tried and the plan to prevent further small-bowel disease to avoid additional surgeries.

4. Hospital stay and recovery expectations:
- Many people report hospital stays of about one week to 10 days for this procedure, which is much shorter than the previous 3-month stay.
- One person, two weeks post-op after a colectomy and new ileostomy, is already active at home, doing housework, and experiencing faster output but better energy and a flatter abdomen.

5. Practical preparation tips:
- Bring entertainment like books, puzzles, or a tablet to make your hospital stay more comfortable.
- Have a support person accompany you to appointments, take notes, and help at home during the initial recovery period.
- Be kind to the nursing staff from the beginning, as a good relationship often leads to better care.

6. Emotional support:
- It’s normal to feel nervous, but the surgery should ultimately provide relief from frequent doctor visits and medications. Others have pledged ongoing support and encourage sharing updates with the community.