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Oct 25, 2024

Does Your Bag Also Smell Like Onions?

This topic is about dealing with a persistent onion-like odor from an ileostomy output and the challenges of managing it with available supplies. The person experiencing this issue has tried various solutions but still struggles with the smell and supply limitations. Here are some insights and advice that might help:

1. Odor and Diet:
- Some people notice that the odor of their output changes with their diet. Foods like garlic and onions can cause lingering smells.
- A short intestinal transit, which is common with ileostomies, might make the odor stronger and less variable because the food is less digested.

2. Deodorant Options:
- Consider trying different unscented or alternative deodorants such as Coloplast Brava Lubricating Deodorant, Hollister Lubricating Deodorant, or specialty brands like Na’Scent and Safe n Simple. Many of these brands offer free samples.
- If a supplier says an item is not covered, ask your doctor to include it in your prescription. Once it's on the original order, future shipments usually don't need new approval.

3. Working with Suppliers and Insurance:
- Sometimes distribution companies drop items because they mark up prices beyond what insurers will pay.
- When setting up an account, list all products you might need so your doctor can sign once. You can adjust quantities later without needing re-approval.
- If your current supplier continues to make mistakes, consider switching to another supplier like Edgepark or 180 Medical if your plan allows.

4. Finding Barrier-Film Wands and Adhesive Removers:
- Alternatives to DermaRite StingFree 3 ml include 3M Cavilon Advanced Skin Protectant wand and Medline skin-prep wand.
- Other members have found 3 ml wands at places like BettyMills.com and Walmart’s online marketplace.
- Compare prices at MedicalMonks.com, VitalityMedical.com, and Amazon, as sometimes online prices are lower than through distributors.

5. Skin Protection Products:
- The 3M Advanced Skin Protectant is highly recommended, though it may not be covered by Medicaid, so purchasing online might be necessary.
- Wipes are less effective than wands or sprays for creating a barrier and may require multiple wipes per change.

6. Cost-Saving and Search Tips:
- Use Prime-eligible items on Amazon to avoid shipping fees.
- Search directly on medical-supply websites, as Google might not show specific product pages.
- Request free samples from manufacturers like Coloplast, Hollister, Safe n Simple, and Na’Scent to try products before buying.
See full discusison
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