This topic is about a person who recently discovered they have a parastomal hernia, which was identified in a CT scan. They are upset because this hernia was noted in a previous scan a year ago, but no one informed them. The person is frustrated with their surgeon's communication and is planning to address these concerns. Here are some helpful insights and advice for anyone in a similar situation:

- Always request and keep copies of all your medical records, including radiology reports, images, surgical notes, and lab results. In the U.S., you have the right to access these, and imaging centers can provide them on CDs or through online downloads.

- Read the radiologist’s summary report, as it provides a clear overview of the findings and is easier to understand than the raw images. Use this report to prepare specific questions for your doctor and to compare with previous scans.

- Prepare for your medical appointments by writing down questions in advance, bringing them with you, and taking notes during the visit. Approach your surgeon calmly and professionally; starting with a courteous remark can help avoid a defensive reaction and lead to clearer answers.

- Be your own health-care advocate. If information is not provided, ask for clarification. If a doctor is dismissive, consider escalating the issue to your insurance company, medical boards, or through online reviews. Constructive use of your frustration can lead to better communication.

- Consider seeking a second opinion or changing doctors if you feel your concerns are not being taken seriously. Many people have successfully switched to new healthcare providers.

- Understand the risk factors and prevention methods for parastomal hernias. Movements like reaching, bending, and stretching, not just heavy lifting, can contribute to hernias. Maintaining or reducing weight can help but may not completely prevent them.

- If the criteria for what is considered a "big" hernia keep changing, ask your surgeon for clear, objective thresholds and treatment plans. Do not accept vague answers.

- Online patient communities can be a great resource for identifying issues, such as recognizing a hernia, and for learning what questions to ask your healthcare providers.

- Use your insurance as leverage. If a test was inaccurate or unnecessary, you can challenge the payment and hold the physician accountable.

- If you need images for a second opinion, make sure to obtain them. Otherwise, the written report is usually enough for discussion.