Topic Explanation

The forum discussion revolves around the concerns and fears associated with traveling with an ileostomy. The original poster, who has had an ileostomy for about 10 years and a j-pouch for 20 years prior, expresses anxiety about potential health issues such as getting sick or experiencing a blockage while traveling. They are seeking advice on how to manage these fears to lead a more active and fulfilling life in retirement.

Advice and Insights

1. Experience and Confidence:
- If you manage your ileostomy well in daily life, you should be able to handle it while traveling. Experience with an ileostomy and a j-pouch provides a strong foundation for dealing with potential issues.

2. Mindset and Encouragement:
- Embrace life and travel despite fears. Take deep breaths, relax, and plan your trips. Life is unpredictable, and it's important to live fully.
- A life lived in fear is a life half-lived. Traveling can lead to amazing experiences and memories.

3. Practical Tips for Traveling:
- Be cautious with food choices while traveling, similar to how you are at home. It's okay to inquire about ingredients and avoid foods that might cause issues.
- Stay hydrated by keeping a bottle of water with you.
- Be aware of changing air pressure on airplanes, which can affect your ileostomy.

4. Preparation and Supplies:
- Bring more supplies than you think you'll need. The advice is to take three times the amount of equipment you usually use.
- Consider carrying a change of clothing in case of an in-flight incident.
- Utilize the allowance for a free "medical bag" carry-on provided by airlines under the ADA in the US.

5. Resources and Support:
- Recommended reading: "Yes We Can!" by Barbara Kupfer and others, which offers practical advice for ostomates.
- Consider starting with short trips to build confidence, gradually increasing the duration and distance of your travels.

6. Insurance and Health Coverage:
- Ensure you have extra health coverage, such as Blue Cross or OHIP, to cover potential medical expenses while traveling.

7. Personal Stories and Encouragement:
- Many have traveled extensively with an ileostomy without major issues. Personal stories highlight the possibility of enjoying travel and life despite initial fears.
- Start with small, manageable trips to build confidence and gradually expand your