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Jan 02, 2025

Double Ostomy Experiences - Who Else Has Both?

Living with both an ileostomy and a colostomy can be a unique experience, and it's understandable to seek out others who share this situation. Here's a bit more about what this involves and some helpful insights:

- In cases like Sam's, nearly all waste exits through the ileostomy, while the colostomy mainly produces mucus. This setup can occur after emergency surgery, where the exact reasons might not be clear due to the urgency and sedation during the procedure.

- Having two stomas is not very common, but it does happen. For instance, someone might have a temporary combination of a dormant colostomy and a working ileostomy. The colostomy might be removed later if the ileostomy is functioning well.

- Surgeons might leave a distal colostomy in place for several reasons:
1. To allow for distal feeding and better nutrient absorption.
2. To maintain the colon's ability to absorb nutrients and prevent it from weakening.
3. To provide an outlet for mucus, which can prevent painful build-up or infection, especially if the patient has Short Bowel Syndrome.

- It's rare to have both stomas long-term. Typically, most waste will exit through the ileostomy, while the distal colon will only produce mucus.

- Sometimes, there can be confusion between an ileostomy and an ileal conduit, which is a type of urostomy. It's important to confirm with your healthcare team whether the second stoma is for urine or stool.

- In some cases, people with a urostomy might also have a colostomy to help manage bowel movements, especially after a spinal cord injury. Having multiple permanent stomas, like a urostomy and a colostomy, is not unheard of.

- Before deciding on permanent dual stomas, it's crucial to consider the quality-of-life benefits against losing a functioning colon. Those who already have experience with one stoma often find it easier to adapt to having a second one.
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