This topic is about someone who is in the middle of a three-step surgery process for Ulcerative Colitis. They currently have a loop ileostomy and a constructed but unused J-pouch. Although their surgeon is encouraging them to complete the final step of the surgery, which involves activating the J-pouch, they are considering delaying this step. They feel comfortable with their current situation and have several reasons for wanting to wait, such as mastering ostomy care, avoiding a long work absence, and enjoying upcoming activities without the worry of surgical recovery.

Here are some insights and advice shared by others who have been in similar situations:

1. Some people have kept an unactivated J-pouch for a long time without issues. For example, one person mentioned a friend who has had an inactive J-pouch for about 12 years without problems.

2. Another person shared that they switched to a permanent ileostomy after using their J-pouch for 12 months, and the pouch has been inactive for about 6 years now.

3. There is a risk that the pouch outlet might close if left inactive for too long. One person had to delay their reversal for 7 months and needed regular in-office procedures to keep the outlet from closing.

4. Satisfaction with J-pouches varies widely. Some people adapt well, while others experience ongoing issues like urgency and pain, leading them to revert to an ileostomy. One person dealt with problems for 18 years before having their pouch removed and felt much better afterward.

5. There are potential long-term medical concerns with leaving a pouch inactive. One surgeon mentioned the risk of cancer in unused tissue as a reason not to leave a pouch inactive.

6. It's important to keep in close contact with your surgeon if you decide to delay the final step. Regular check-ups can help ensure the pouch and surrounding areas remain healthy.

7. Consider your work and lifestyle when deciding on the timing for the final surgery step. Some people have delayed the procedure to accommodate their job or personal plans.

8. While delays of several months or even years are possible, different surgeons may have their own limits based on the risks they perceive, such as tissue atrophy or other complications.