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Jan 28, 2025

Living with MS and Considering Ostomy Surgery for GI Issues

Topic Explanation
The discussion revolves around a person with Multiple Sclerosis (MS) who is considering ostomy surgery due to chronic gastrointestinal issues, specifically a non-functioning lower sigmoid colon. The individual experiences significant daily disruptions due to their condition and has been advised by their surgeon that an ostomy could improve their quality of life. However, they are apprehensive about the surgery and its implications, seeking insights and personal experiences from others who might have faced similar health challenges.

Advice and Insights from Replies
1. Emotional Preparation and Denial:
- It's common to experience denial and fear before undergoing ostomy surgery. Sharing these feelings, as you are doing, is part of the emotional preparation needed for such a significant medical decision.

2. Surgical Options and Management:
- A colostomy might be necessary due to the non-functioning sigmoid colon. This could potentially allow for irrigation, which offers more control over bowel movements, though this depends on one's dexterity and mobility, which might be affected by MS.
- An ileostomy might be more appropriate than a colostomy in cases of severe pelvic floor dysfunction and fecal incontinence (FI), as it can reduce the time spent on bowel care and improve independence.

3. Post-Surgery Adaptation and Management:
- Learning to manage an ostomy typically involves initial challenges, such as handling the equipment (wafers, bags) and maintaining skin health around the stoma. However, many adapt quickly within a few weeks to months.
- Consider ordering pre-cut wafers if manual dexterity is an issue, as this can simplify the process of changing them.

4. Physical Concerns and Recovery:
- Post-surgery pain and recovery are significant concerns but are generally manageable with proper medical support and pain management strategies.
- Ensure the stoma protrudes sufficiently (about an inch) post-surgery to prevent complications like sore or raw skin around the stoma.

5. Long-term Outcomes and Quality of Life:
- Many individuals report a drastic improvement in quality of life post-surgery, with significant reductions in pain and the ability to return to normal activities.
- Hernias are a noted risk, particularly in patients with neurological conditions, and should be discussed with a surgeon when considering the type of ostomy.

6. Decision Making:
- Ultimately, the decision to proceed with ostomy surgery is
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