This topic is about someone living with multiple sclerosis (MS) who is experiencing severe gastrointestinal issues due to colonic dysmotility. This condition has led to significant challenges, such as prolonged constipation and incomplete bowel movements, which greatly affect their daily life. They are considering elective ostomy surgery, which their surgeon believes could improve their quality of life. However, they are understandably anxious about the surgery and are seeking advice from others who have faced similar situations.

Here are some insights and advice shared by others:

1. It's normal to feel uncertain or in denial before surgery. Many people have felt unsure about their diagnosis until the operation. Talking about these feelings can be very helpful.

2. For those with MS-related constipation or fecal incontinence, a colostomy or ileostomy might be the best option for relief. The choice is between continuing to struggle or learning to manage an ostomy.

3. Irrigation can be effective with descending or sigmoid colostomies, providing predictable bowel control. It's important to consider if your manual dexterity and pelvic-floor issues will allow you to perform this comfortably.

4. When deciding between an ileostomy and a colostomy, consider that neurological disorders can increase the risk of hernias. Hernias are more common with colostomies, so some surgeons prefer a laparoscopic loop ileostomy for those with poor motility and pelvic-floor dysfunction.

5. If you have peripheral neuropathy or MS-related hand weakness, cutting wafers can be challenging. Switching to pre-cut wafers once the stoma size stabilizes (around six weeks) can help.

6. Most people find that they master appliance changes and skin care within a month after surgery. Concerns about pain and appliances tend to diminish quickly.

7. Many who had non-motile colons report that surgery was the best decision they ever made, freeing them from laxatives, enemas, and a house-bound life. Some even felt "normal" for the first time in months after waking up from surgery.

8. Surgical pain is generally manageable with medication, and focusing on the long-term relief can help overcome fear.

9. When it comes to stoma construction, ensure the surgeon creates a stoma that protrudes at least 1 inch once healed. A stoma that is too short can cause chronic skin irritation. It's better to have a stoma that's a bit too long than too short, as long as there's enough intestine length.

10. Don't let fear stop you from undergoing a procedure that could restore your independence and comfort. Many people have had multiple surgeries and still view them positively.