Topic Explanation:
The forum discussion revolves around a user seeking advice for their husband, who experiences severe burning sensations through his stoma after meals, particularly dinner. Despite adjusting his diet and consulting with a surgeon, the issue persists. The user has tried various remedies, including hot tea and acid-reducing medications, but the burning continues for several hours each night. The user is seeking advice on managing this discomfort, especially since they are having difficulty accessing a stoma nurse and the husband is undergoing chemotherapy.
Advice and Insights:
1. Check for Leakage:
- Ensure there is no leakage around the stoma, as the stoma itself has no nerve endings, but the surrounding skin does, which can cause pain if exposed to output.
- Consider using a barrier ring to prevent leaks, as it can absorb output and swell to close micro-gaps.
2. Barrier Ring vs. Paste:
- Some users suggest avoiding stoma paste unless there are uneven skin surfaces, as it can be difficult to work with and may cause gaps.
- Barrier rings are recommended for their ability to mold snugly around the stoma and prevent leaks. However, if the stoma is retracted, paste might be more effective.
3. Chemo and Stoma Sensitivity:
- Chemotherapy can alter stool consistency, making it more acidic and potentially irritating the stoma.
- Consult with the oncologist to explore if the burning sensation could be a side effect of chemotherapy and if adjustments to the treatment are possible.
4. Dietary Adjustments:
- Consider trying a BRAT diet (bananas, rice, applesauce, toast) to see if it reduces symptoms, and reintroduce other foods slowly.
- Monitor if certain foods or drinks, like tea, exacerbate the burning sensation.
5. Consult Healthcare Professionals:
- Seek advice from a gastroenterologist and a stoma nurse for specialized care.
- A CAT scan and further medical evaluations may help identify underlying issues.
6. Alternative Ostomy Products:
- Experiment with different ostomy appliances, such as convex bags or those with different adhesives, to find one that minimizes discomfort and leakage.
7. Consider Neuropathy:
- Some users report similar burning sensations due to neuropathy, which could be a factor if the burning is not related to skin irritation or leakage.
8. Persistent Advocacy:
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