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Apr 13, 2025

Ileostomy Bag Pain and Stoma Size Changes

Topic Explanation
The discussion centers around discomfort and pain associated with an ileostomy bag, particularly when it fills. The original poster mentions a significant reduction in stoma size from 44 mm to 26 mm over two years and seeks advice on whether others experience similar pain or changes.

Advice and Insights
1. Pain and Discomfort:
- Some users report momentary muscular discomfort around the stoma during output, which is not constant and may be related to muscle contractions.
- Pain should not be constant; if it is, medical advice should be sought.

2. Stoma Size Changes:
- It is common for stomas to shrink after surgery, usually stabilizing within weeks. A significant reduction over a longer period may require medical evaluation.
- Users suggest checking with a stoma nurse or consultant to understand the cause of size reduction and associated pain.

3. Managing Pain and Discomfort:
- Laying flat and taking deep breaths can help relax the stoma if it becomes tense.
- Gentle pressure around the stoma may release trapped air and relieve pressure.
- Consider using an anti-hernia device like a wrap or Velcro belt and consult a stoma nurse to rule out a hernia.

4. Dietary Considerations:
- Some foods can cause discomfort or increased output, such as spring rolls or foods with skins and seeds. It's important to monitor and adjust diet accordingly.
- Eating smaller meals may help reduce discomfort when the bag fills.

5. Product and Equipment Check:
- Ensure the barrier/wafer/flange opening is appropriately sized for the stoma, especially if it expands during output.
- If discomfort persists, consider consulting a doctor for further investigation, such as a CT scan or MRI.

6. General Experiences:
- Some users share personal experiences of stoma size changes and dietary impacts, emphasizing the importance of individual management and medical consultation.
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