This topic is about someone who is five months into life with a colostomy and is finding it difficult to cope. They feel overwhelmed, depressed, and struggle with daily stoma care. They are reaching out to the community for support and advice on how to move forward.
Here are some helpful insights and advice shared by others:
1. Emotional and Psychological Support
- Take small steps by setting one manageable task each day and celebrate your progress.
- Recognize that you are grieving the loss of your former body. Counseling or therapy with someone who understands ostomy issues can be beneficial.
- Talk openly about your feelings with family, friends, or professionals to avoid bottling them up. Engaging in humor, music, hobbies, and focusing on positive activities can help with adjustment.
- Many people find the first 6 to 12 months the hardest, but confidence and a sense of normalcy often develop over time.
2. Practical Stoma-Care Tips
- Experiment with different pouching systems to find what works best for you. Some options include:
- One-piece Coloplast SenSura Mio, which can be changed quickly.
- Hollister 2-piece systems that allow for easy bag changes and gas release.
- Use accessories to reduce mess and odor, such as Hollister Lubricant & Deodorant or M9 Deodorizer Drops.
- Make the change routine pleasant by playing music, rewarding yourself, or using decorative bag covers.
- Consider showering without the pouch or airing the stoma in bed, as many report no skin issues from doing so.
- Once healed and trained, colostomy irrigation might be an option.
3. Travel and Activities
- Many people continue to enjoy activities like gardening, traveling, and even riding motorcycles after their ostomy.
- Cruises and long flights are possible with some preparation:
- Eat lightly before flying and stay hydrated.
- Board early to allow extra time.
- Carry a compact kit with essential supplies.
- Ensure you have good travel insurance with medical evacuation options.
- Road trips can be smooth if you pack all necessary supplies.
4. Diet and Beverages
- Most people regain the ability to eat a variety of foods, though some may need to avoid certain items like beans or sodas.
- Moderate wine or cocktails are generally tolerated, and many enjoy a couple of glasses on cruises.
- Peppermint tea can help with gas pains, and staying hydrated can reduce odor and thick output.
5. Managing Anxiety and Depression
- If you experience panic attacks, palpitations, or persistent despair, consider seeking professional help. Medication or therapy, along with peer support, may be needed.
- Try to view the pouch as a life-saving medical advance and practice self-compassion to aid in acceptance.
6. Miscellaneous
- Keep products like hydrogen peroxide or Hollister deodorants in the bathroom to help with odor when rinsing the pouch.
- Engage in hobbies, join support groups, or participate in fun local outings to rebuild confidence and create new memories.
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