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May 09, 2025

Stoma Reversal Decision

This topic is about an 83-year-old person who is considering whether to undergo a stoma reversal surgery after having colorectal surgery. The decision is complicated by the potential risks and benefits of the procedure, as well as the person's current quality of life with an ostomy. Here are some insights and advice shared by others in similar situations:

1. The first surgeon was confident about the surgery but did not emphasize the risks involved.
2. A second opinion from a surgeon at Northwestern suggested that the risks might be unnecessary, especially since:
- The person can perform all necessary activities with the ostomy.
- There was no hernia detected, which was a major reason for considering the surgery.
- If the person can manage appliance changes, it might be better to avoid potential complications.

3. The person dislikes changing the ostomy bag daily and finds it challenging to find comfortable clothing, but these issues might be preferable to the risks of surgery.

4. It's important to seek multiple opinions, as hospitals often benefit financially from performing surgeries.

5. Daily pouch changes are not typically necessary. If you find yourself changing the pouch frequently, check for leaks, a poor seal, or unsuitable products. Many people with a colostomy can go 2–3 days per pouch and 7–10 days per wafer.

6. Experiment with different systems and combinations, as a poor fit can lead to frequent changes. Some find the Hollister 2-piece system (wafer + snap-on pouch) to be quick to change and gentle on the skin.

7. Over-changing wafers can harm the skin around the stoma, so try to extend the wear time.

8. Contact ostomy supply manufacturers for free samples and access to their ostomy nurses for personalized fitting assistance.

9. Several people have chosen to keep their colostomy or ileostomy rather than risk a reversal due to:
- The possibility of anastomotic failure, which could lead to another stoma.
- Pre-existing risk factors like previous radiation, multiple surgeries, or a short remaining colon.
- Concerns about a reduced quality of life, such as frequent bowel movements or additional hospital stays.

10. One person shared that their attempted ileostomy reversal was a disaster, highlighting the need for caution with elective surgeries.

11. Success rates and waiting periods for reversals can vary. Some surgeons report only about a 40% success rate and require long waiting periods before considering a reversal.

12. In the U.S., surgeons might seem more inclined to recommend surgery due to financial incentives, so it's crucial for patients to stay informed and cautious.
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