This topic is about someone who has had an ileostomy for six years without major issues until recently. They have been experiencing severe pain, constipation, and blockages, leading to multiple hospital visits. The stoma is now shrinking and retracting, making it difficult and painful for stool to pass. Despite a CT scan showing nothing, they suspect stoma stenosis or retraction and are seeking advice from others who might have faced similar issues.

Here are some helpful insights and advice shared by others:

1. Sudden shrinkage and retraction of the stoma can sometimes be linked to an intestinal blockage. It's important to watch for symptoms like bloating, excess gas, or nausea, which often accompany stenosis-related obstructions.

2. One person shared a similar experience where their stoma became large and then suddenly retracted before they needed to visit the ER. They suggest considering a blockage as a possible cause.

3. Some have resolved severe stenosis or retraction through surgery:
- One had their stoma re-sectioned and relocated to the opposite side after a scope revealed narrowing.
- Another underwent stoma revision surgery when the opening became too small, and the surgeon created the best possible profile given the circumstances.

4. Everyone emphasizes the importance of consulting a colorectal surgeon promptly. Persistent pain, repeated blockages, and visible retraction often indicate the need for surgical assessment rather than relying on repeated NG tubes and laxatives.