Stoma Stenosis and Retraction: Seeking Advice and Experiences

Does anyone know anything about stoma stenosis or a retracting stoma? It's been 6 years since getting my ileostomy and I have had very little issues. 3 weeks ago, however, I was admitted to the hospital for blockage and constipation. They put an NG tube in and put me on laxatives and sent me home. 2 days later, the pain is back and the same symptoms. I go to the ER and they do the same thing: stay for a few days, go home, and 2 days later, the same thing. 3 hospital stays in the last 3 weeks. I've been home now for 5 days. When I came home this time, though, I noticed my stoma was shrinking and going inside my skin. I get horrible, excruciating pain when this happens and stool is very hard to pass. I looked it up and think it's stenosis, but nothing shows up on the CAT scan. I'm doing an upper GI on Monday; hopefully, that will show something. Has anyone ever had stoma stenosis or a retracting stoma? How did you get better?

Could be like a blockage. Are you noticing other symptoms like bloating, more gas, or being nauseous? Last fall, my stoma was huge, and then the week before I admitted myself to the ER, my stoma shrank and was pulling in and out.

Hi, sounds like what I had, stoma resected and pulled to skin level and blockages. The surgeon tried to scope it, but it barely went in 6-7 in. So then I had resection surgery and the stoma moved to the left side.

I just had a revision to my stoma due to stenosis; mine was smaller than my pinkie, and it hurt most of the time. I also have quite an innie, though I discovered it's because they cannot find the fascia to which they could connect in order to give me an outie. I would talk to your surgeon; it sounds like something else is going on for you.