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May 29, 2025

Help Needed: Daily Leaks with Skin-Level Ileostomy

This topic is about a 17-year-old girl who has a temporary ileostomy due to a car accident. She is experiencing daily leaks with her skin-level stoma, which is causing frustration for her and her family. They are looking for solutions to manage these leaks until her planned reversal surgery in mid-August. Here are some helpful insights and advice shared by others:

1. Skin preparation
- Use skin-prep wipes or spray before every change. Some people find that adding a true skin-prep layer can significantly improve adhesion.
- Experiment with different types of skin-prep products, as some find sprays less sticky than wipes.

2. Alternative seals and rings
- Try the Hollister Adapt Oval Convex Barrier Ring, which is designed to fit inside uneven dips and has helped others stop leaks.
- Continue testing the Hollister Adapt CeraRing, as it has shown the best skin response so far.
- Consider cutting the hole in the wafer and ring smaller than the stoma to minimize leakage.

3. Re-evaluate convexity
- If convex pouches are uncomfortable and not effective, switch to flat or soft convex options and use rings or paste to create custom convexity.

4. Paste and strip techniques
- Apply paste in a thick oval "donut" shape, let it air-dry until tacky, then seat the wafer. This method has extended wear time for some.
- Completely fill the lower crease with Adapt strip paste before applying the ring or wafer.

5. Adhesion boosters
- Use Skin-Tac™ wipes or liquid adhesive spray to improve wafer grip, especially on moist skin.
- Warm wafers with hands or a hair-dryer, then apply firm pressure for 60–90 seconds.

6. Product trials
- Consider trying the Ostoform FlowAssist Seal, which is designed for liquid ileostomy output.
- Use Remedy cleanser or plain warm water as a soap substitute, as soap residue can affect stickiness.
- Fludroxycortide medicated tape can be used as a temporary "second skin" to help heal the skin, but consult a dermatologist or wound nurse first.

7. Surgical or procedural options
- Ask the surgeon if the stoma can be "pulled out" in the clinic to create a short protrusion and reduce leaks.
- If the current surgeon is hesitant, consider seeking a second opinion from another colorectal specialist.

8. Support and supplies
- Fellow members have offered spare Hollister convex flanges for trial, and private messaging is suggested for coordination.

9. General skin-care tips
- Avoid using powder unless necessary, as it can reduce wafer adhesion.
- Try a three-layer "crusting" technique (powder, spray, powder, spray) to heal skin and create a tacky surface.
- Allow for air exposure and mild sunlight to speed up skin healing. If possible, have short periods without a pouch or use a loose collection device.

10. Psychological encouragement
- Many people emphasize patience, as a solution or reversal is on the horizon. The mother and daughter are already doing a great job with their research and self-care.
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