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41,442 members
Jun 21, 2025

Looking for Support: Anyone with Double Ostomy Experience?

This topic is about finding support for someone living with a double ostomy, which means they have both a fecal and urinary diversion. The person in question has faced frequent hospitalizations and undergone two hernia-repair surgeries in a year. The goal is to connect him with others who understand his unique challenges, hoping that peer support will boost his spirits.

Here are some helpful suggestions:

1. Encourage him to join online communities, such as this forum and the United Ostomy Associations of America website (uoaa.org), to access valuable information and connect with others who share similar experiences.

2. There are several members who have both a colostomy and a urostomy, often referred to as "double-baggers," who are open to sharing their experiences and coping strategies.

3. Considering his frequent hospital visits and multiple hernia surgeries, it might be beneficial for him to seek a second opinion from another surgeon. This can help ensure that all possible treatment options have been considered, even if it confirms the current plan.
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