Looking for Support: Anyone with Double Ostomy Experience?

Replies
4
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542
chichang24
Jun 21, 2025 3:58 am

Hi, with all due respect to everyone, I joined this group to actually find someone with the same case as my boss's husband. He has a double ostomy, and I believe it has been hard for him since he's been in and out of the hospital for the last 2 to 3 years. This time, he's going for another surgery to fix his hernia, which is, by the way, the second surgery for hernia this year. I would really appreciate meeting someone with his same case; hopefully, we can cheer him up. I know that as much as I would like to keep him positive, I am not in the right position to do so, as I do not even have the slightest idea what he is feeling. Please do not hesitate to reach out to me.

Thank you so much!

ron in mich
Jun 21, 2025 1:53 pm
Very helpful

Hi Chic, the best thing to do is encourage your friend to join this site or uoaa.org for info.

infinitycastle52777
Jun 21, 2025 2:44 pm
Very helpful

Have him join the site; there are people on here with double ostomies. He might be able to get some support and help dealing with his situation.

Posted by: Nini4

Well,  I  hit the two year mark. I went back and read my posts from when I first found this site. I was very fortunate in that I stumbled upon it only 4 weeks post op. I have said many times that this community really saved me. The first 2 weeks after my surgery I shut down completely. It wasn't until about the 3rd week that my son came in to my room, flicked on the light and told me I was going to have to get back to living because I was scaring him. I had fallen into such a depression.  He  ticked me off,  but it also made me stop and think- what was I going to do? Feel sorry for myself and sulk, or be grateful I was alive. 

I've re-read my journals from that time and it was after my son kicked my butt, so to speak, I took an honest inventory and had to dig deeper than I've ever had to. I mean, I had survived a pretty nasty divorce, after a pretty crappy marriage and that was tough. But this was different. I felt like I was now a handicapped person who would be limited in their life and be looked at as a freak. My mental state was precarious, at best. 

But then I found this site. I just lurked a bit before posting. I read so many of the other stories and I started to see just how full my life can be, I was not handicapped,  and certainly not a freak! The stories of survival, the sense of humor, the support and compassion was inspiring.  It was then I made myself get out of the dark, and get my sh*t together.  

Not all rainbows and sunshine at first, hardly! But with grace from myself - to myself, and the kindness and willingness of the folks here to be supportive, non judgemental and openly share intimate details about their life circumstances,  l not only survived but thrived. 

I think of all the years I had suffered with such extreme pain, barely functioning,  and the many hospital stays and how that is all behind me now.  (All fingers, toes, and legs crossed that I never have to go near a hospital for myself ever again. I think I'd rather have a fork stuck in my eye. I loathe every about them.)  

So, to everyone who has been a part of this journey with me, to say thank you is not enough. I'm forever grateful to know you all.  My Angels, each one of you. 

 And as the Grateful Dead famously said,

"what a long strange trip it's been!"

Im so happy I'm tripping with you all.


SusanT
Jun 21, 2025 5:33 pm
Very helpful

I have 2 ostomies, a colostomy and a urostomy. There are fewer of us double baggers around, but there are more on this site and even more out in the world.

Get him to join us here. He should really see another surgeon; that's a lot of hospital visits. I'd want a second opinion even if it agrees with the first.

chichang24
Jun 24, 2025 1:01 am

Thank you so much! I would let my boss know about this site when I come back to work. Hopefully, her husband can meet and talk to you! God bless!!!

 

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