Looking for Support: Anyone with Double Ostomy Experience?

Replies
4
Views
541
chichang24
Jun 21, 2025 3:58 am

Hi, with all due respect to everyone, I joined this group to actually find someone with the same case as my boss's husband. He has a double ostomy, and I believe it has been hard for him since he's been in and out of the hospital for the last 2 to 3 years. This time, he's going for another surgery to fix his hernia, which is, by the way, the second surgery for hernia this year. I would really appreciate meeting someone with his same case; hopefully, we can cheer him up. I know that as much as I would like to keep him positive, I am not in the right position to do so, as I do not even have the slightest idea what he is feeling. Please do not hesitate to reach out to me.

Thank you so much!

ron in mich
Jun 21, 2025 1:53 pm
Very helpful

Hi Chic, the best thing to do is encourage your friend to join this site or uoaa.org for info.

infinitycastle52777
Jun 21, 2025 2:44 pm
Very helpful

Have him join the site; there are people on here with double ostomies. He might be able to get some support and help dealing with his situation.

Hugo

This site has been a blessing for me in learning how to cope with and navigate this journey as an ostomate. I have a colostomy as a result of a perforation in my colon since May of this year. I don't know yet if it will be permanent or reversible. The people on here have provided me with so much advice and information about living with an ostomy that I don't think I could get anywhere else. You all have given me hope and a place to come to for support. I still struggle with acceptance, but know that it will come if I am patient. Patience has never been my strong suit! Also, I love all the humor, although it really pissed me off when I first came on here. Thanks to all of you.

SusanT
Jun 21, 2025 5:33 pm
Very helpful

I have 2 ostomies, a colostomy and a urostomy. There are fewer of us double baggers around, but there are more on this site and even more out in the world.

Get him to join us here. He should really see another surgeon; that's a lot of hospital visits. I'd want a second opinion even if it agrees with the first.

chichang24
Jun 24, 2025 1:01 am

Thank you so much! I would let my boss know about this site when I come back to work. Hopefully, her husband can meet and talk to you! God bless!!!

 

Stories of Living Life to the Fullest from Ostomy Advocates I Hollister

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