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Jul 15, 2025

Proctectomy and Colostomy Advice Needed

This topic is about transitioning from an ileostomy to a colostomy following a proctectomy. The person is curious about whether managing a colostomy is indeed easier, as their surgeon suggested, and is seeking advice from others who have experienced this change. Here are some helpful insights and tips shared by others:

1. Colostomy vs. Ileostomy
- Colostomy bags typically require less frequent emptying, often not needing attention during the night, and the output is usually firmer.
- Issues with hydration and nutrient absorption are generally less of a concern with a colostomy.
- It's important to ensure good stoma placement and you might need to try different products to find what works best for your new stoma.

2. Hernias
- Parastomal hernias are a common occurrence after a colostomy, so it's important to keep an eye out for them.
- If a hernia is painless and not causing any issues, many surgeons recommend leaving it alone, as repair surgery can sometimes lead to new hernias.
- Mesh repairs can sometimes move or fail, so it's important to discuss the risks with your surgeon.
- If a hernia causes a blockage or significant symptoms, it's important to discuss repair options with your surgeon as soon as possible.

3. Post-Proctectomy (Flap/“Barbie-butt”) Care
- In the UK, the standard closure involves a buttock-skin flap with stitches, so there is no open hole.
- You may experience tightness across the buttocks, which will gradually ease but can persist for some time.
- Numbness in the area is common but usually improves over time.
- After surgery, it's recommended to lie on one side for several days to protect the flap's blood flow. Using a rolled towel or a contoured/memory-foam pillow can help prevent accidental rolling.
- It's important to start moving gently soon after surgery. Your range of movement, like bending to tie shoelaces, will improve with time and light exercise.
- For showering, disposable plastic waist skirts can help keep dressings dry. Standing half-in and half-out of the shower cubicle might be awkward but is only temporary.
- Once dressings are removed, they may weep, so using thin pant-liners can help protect your clothing.
- Sensations described as feeling like a "carrot up there" or a "massive wedgie" will gradually diminish.
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