This topic is about someone who has been waiting for over six months for a management plan from a multidisciplinary team (MDT) due to issues with their ileostomy. They experience severe pain when their food thickens, leading to weakness, exhaustion, hunger, and ongoing struggles with cyclic vomiting syndrome (CVS). Because solid food is difficult to manage, they rely mainly on prescribed nutrition milkshakes.
Here are some pieces of advice and insights that might be helpful:
1. Seek further medical attention immediately:
- Try to arrange appointments with other consultants or return to the emergency department if needed.
- Ask your GP for an urgent referral to a different surgeon and request comprehensive blood tests to check for any developing complications.
2. Do not hesitate to keep going to the emergency department if your symptoms get worse. Delayed treatment can lead to serious issues, as experienced by others.
3. Be persistent during all medical consultations. Insisting on action can sometimes speed up investigations and treatment.
4. Focus on maintaining hydration and calorie intake:
- Continue with the nutrition shakes as they are a vital source of nutrients.
- Drink liquids that you can tolerate, such as water, broths, tomato soup, and packet Knorr Chicken Noodle Soup.
- Some easy-to-eat solids that might be manageable include Cadbury Dairy Milk Caramel bars and plain biscuits.
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