Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,403 members
Jul 21, 2025

Corrected: Update from Kerry

This topic is about someone who has been waiting for over six months for a management plan from a multidisciplinary team (MDT) due to issues with their ileostomy. They experience severe pain when their food thickens, leading to weakness, exhaustion, hunger, and ongoing struggles with cyclic vomiting syndrome (CVS). Because solid food is difficult to manage, they rely mainly on prescribed nutrition milkshakes.

Here are some pieces of advice and insights that might be helpful:

1. Seek further medical attention immediately:
- Try to arrange appointments with other consultants or return to the emergency department if needed.
- Ask your GP for an urgent referral to a different surgeon and request comprehensive blood tests to check for any developing complications.

2. Do not hesitate to keep going to the emergency department if your symptoms get worse. Delayed treatment can lead to serious issues, as experienced by others.

3. Be persistent during all medical consultations. Insisting on action can sometimes speed up investigations and treatment.

4. Focus on maintaining hydration and calorie intake:
- Continue with the nutrition shakes as they are a vital source of nutrients.
- Drink liquids that you can tolerate, such as water, broths, tomato soup, and packet Knorr Chicken Noodle Soup.
- Some easy-to-eat solids that might be manageable include Cadbury Dairy Milk Caramel bars and plain biscuits.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,403 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

Leaking Ostomy: Seeking Advice for Belly Button Issues
Metamucil Success: A Simple Suggestion from My New Gastro Doctor
Stealth Belt
Colonoscopy Prep and Wafer Security Tips
Black Polyp on Stoma: Seeking Advice and Experiences
Hey stoma mamas!
Hello to you who may read this.
David Letterman's Top 10
Barbie butt healing time
Leaking Where Pouch Connects to Ring

New Topics

B.Withers -Be Kind 81
B. Withers - Be Kind 112
Would love to meet some going through the same thing
B. Withers - Be Kind 79
Best Parastomal Hernia Belt for Women with a Muffin Top?
A BOOK INHERITANCE
Hollister 2piece system
Spinal Surgery After Ileostomy: Seeking Advice
Miss Universe Canada Contestant with Crohn's Hopes to Inspire Others
Esophagram with Barium and Ostomy Pouch Concerns
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑