Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,405 members
Aug 08, 2011

Life and Loss - My Journey Post-Urostomy

This topic is about coping with life changes after undergoing a urostomy and the surgical removal of the uterus and part of the vagina due to aggressive bladder cancer. The person is dealing with significant changes in body image, self-esteem, and their sense of womanhood. They are grateful for their supportive spouse but are also grieving these profound changes. Here are some pieces of advice and insights shared by others who have faced similar experiences:

1. Emotional support
- It's important to acknowledge your grief and allow yourself to express your feelings openly. Be gentle with yourself, as inner strength often comes from being honest about your emotions.
- Self-love is crucial. Valuing yourself is the first step towards building intimacy with others.

2. Redefining intimacy and sexuality
- Intimacy is not limited to penetrative vaginal sex. Explore other forms of touch, communication, and shared experiences with your partner.
- Creativity and flexibility can lead to satisfying sexual experiences, even after significant physical changes.

3. Give healing time
- Sensation and sexual response may return gradually. Some people have regained satisfying function months or even years after surgery.
- Be patient with yourself, as both physical and emotional recovery can take longer than expected.

4. Practical sexual aids
- Consider exploring adult-novelty shops or reputable online stores for vibrators or other devices. These can help compensate for lost sensation and encourage experimentation with your partner.
- Vaginal dilators, which may already be part of your treatment plan, can help maintain or restore the capacity for penetration.

5. Partner dynamics
- Appreciate supportive partners who remain engaged. Open communication about fears, desires, and alternative activities can strengthen your connection.
- Some people have lost partners who couldn't cope, highlighting the value of those who stay.

6. Community connection
- Engaging with the ostomy community can provide shared understanding and reduce feelings of isolation. Some suggest dating within the community to avoid stigma.
- Participating in forums can offer validation and support.

7. Perspective and positivity
- Remember that these surgeries saved your life. Many find empowerment in focusing on their newfound longevity.
- Volunteering, creative pursuits, and other meaningful activities can help rebuild your identity beyond sexuality.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,405 members.

“I mostly read and still feel like I belong.”

“Doctors took notes; they want others to find this website.”

“From midnight blowouts to big wins, there’s always a hand to hold.”

Join Free

Popular Topics

Hydration Challenges After Colon Removal
Outspoken, outrageous, and newly ostomated — proud mom to a teen son & a rescue wiener who keep me laughing daily.
Pain Relief Tips After Barbie Butt Surgery
Hello from Georgia
Adjusting to Solid Foods Post-Surgery: Tips and Experiences
How do you clean the end of your drainable bag?
Dogs
Affordable Alternatives to Deodorant for Pouches
Attn: Newbies……Ahhhh - A Naked Shower
A DOGGED EDUCATION

New Topics

Nice to meet you all!
Hello from Georgia
You Might be an Ostomate if...
👋🏼y’all:-)
Questions About Eating After Ileostomy Surgery
Lynch Syndrome & Aspirin
Irritated Skin Around Stoma
B. Withers - Be Kind 53
ONE OF A KIND
Debilitating Pain after Granulomas treated with Silver Nitrate
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑