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Aug 07, 2025

Living with Pelvic Radiation Disease and a Stoma: Seeking Support

Living with pelvic radiation disease, a parastomal hernia, and stenosis after rectal cancer can be quite challenging. This topic revolves around someone who has recently undergone treatment for rectal cancer and is now dealing with these complications. They have had their rectum removed and now have a left-sided stoma. The complications they face include a painful parastomal hernia and stenosis, which affect their intestines, bladder, and sexual organs, leading to a diminished quality of life. They are reaching out to see if others are experiencing similar issues.

Here are some pieces of advice and insights shared by others:

1. Many people express their sympathy and confirm that this forum is a supportive place to share experiences and find comfort.

2. One person with a radiation-induced colostomy shares that they have similar pelvic issues, including gynecological problems, the loss of a kidney due to radiation, and chronic radiation enteritis. This highlights that while these side effects are tough, they are not uncommon.

3. A practical suggestion is to insist that your medical providers focus on improving your quality of life as much as possible. It's important to continue advocating for yourself with your doctor.

4. There is encouragement from others who have survived stage-3 cancer and are living with the lasting effects of radiation. They emphasize focusing on gratitude despite ongoing challenges, reminding you that you are not alone in this journey.
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