Living with Pelvic Radiation Disease and a Stoma: Seeking Support

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Brunolove
Aug 07, 2025 5:42 pm

Hello, I just joined. I have got pelvic radiation disease after rectal cancer. I had my rectum removed and am having a stoma on the left side. I developed a parastomal hernia. It is very painful, and together with stenosis in my intestines, bladder, and sexual organs, my quality of life is not good.

Is anybody else having problems with pelvic radiation disease and a stoma?

infinitycastle52777
Aug 07, 2025 6:40 pm

I don't have that problem, but I just wanted to welcome you to the group and say I am sorry you are going through so much right now. It sounds horrible.

Doe1mama

My husband's ostomy nurse recommended the site two years ago. The help and recommendations they have given us is invaluable.

TerryLT
Aug 07, 2025 9:04 pm

It sounds like you are having a bad time. I'm sorry I can't be much help, as I'm not familiar with that particular problem, but I'm sure someone else will chime in. In the meantime, welcome to our group. This is a great place for support and advice.

Terry

SusanT
Aug 07, 2025 10:35 pm

Welcome to the site!

I'm sorry you are struggling. I don't have specific advice beyond urging your doctor to give you back some quality of life.

Kas
Aug 08, 2025 5:08 am

Yep. I don't have my colostomy due to the cancer, but the radiation. I also have other pelvic issues (girlie ones), a kidney died from radiation, and I have chronic radiation enteritis. But…the chemo and radiation kept me from dying from stage 3 cancer - so as much as some of these “side effects” suck, I'm still grateful.

 

My Ostomy Journey: Ryan | Hollister

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ron in mich
Aug 08, 2025 12:53 pm

Hi Bruno, welcome to the site.

Morning glory
Aug 08, 2025 3:30 pm

Welcome to the site