This topic is about dealing with post-surgical neuropathic pain, which feels like a burning sensation under the skin barrier around an ileostomy or colostomy stoma. This type of pain can be quite uncomfortable and usually occurs a day or two after changing the appliance. Here are some shared experiences and practical tips from others who have faced similar issues:
1. Many people experience similar sensations, such as burning, stinging, or electric-shock feelings under the wafer. This often happens when lying down or shortly after changing the bag. It's commonly thought to be due to nerve damage from surgery. While nerves can slowly regenerate, the sensations might lessen over time but can also persist.
2. Some simple ways to cope include:
- Applying light hand pressure over the pouch when the pain starts, which many find provides immediate relief.
- Adjusting your position in bed to prevent output or liquids from pooling against the skin around the stoma.
- Reviewing your diet, as high-acid or very fibrous foods can cause a stinging sensation when the output contacts the skin. Reducing these foods has helped some people.
- If the sensation is mild and infrequent, it might be manageable without intervention, as some long-term ostomates have learned to live with it.
3. Be mindful of accessory products:
- M9 Odor Eliminator Drops can sometimes seep under the wafer and cause a burning feeling, especially when lying down. Consider using less or staying upright until the drops settle.
4. Medications that have helped some people (consult with a doctor before trying):
- Duloxetine (Cymbalta) has provided complete or significant relief for some users.
- Tramadol is used by some for flare-ups, though its effectiveness varies.
- Gabapentin is another option, and some plan to combine it with Cymbalta.
- Prescription 5% lidocaine patches might help with localized pain, depending on placement.
- Other neuropathic pain medications, like pregabalin, could also be beneficial. Discuss with a healthcare provider to find the right dosage and usage.
5. Other clinical options:
- Local nerve-block injections were tried by one person but did not provide relief.
- Regular follow-ups with a colorectal surgeon, ostomy nurse, or pain specialist are recommended to rule out other issues and tailor treatment to individual needs.
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