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Sep 16, 2011

Seeking suggestions for managing high output from ostomies

Topic Explanation
The forum topic is about seeking suggestions for managing high output from ostomies. The original poster has both an ileostomy and a urinary diversion and is experiencing high output from both, leading to dehydration, low sodium and potassium levels, and feeling constantly tired. They are struggling to maintain a good seal for their pouches and are seeking advice on how to manage the high output and its effects on their health.

Advice and Insights
- Consider seeking more specialized medical help, such as a gastroenterologist or ostomy nurse, as GPs may not have sufficient expertise in managing high output from ostomies.
- Explore medications like distilled tincture of opium to help retain fluids and manage output, but be aware of potential dependency.
- Increase intake of fluids rich in electrolytes, such as Gatorade, to help with dehydration and electrolyte imbalance.
- Be persistent in seeking medical help and second opinions until a suitable solution is found.
- Consider adjusting fluid intake and types of liquids consumed to manage output, as certain electrolyte-rich drinks may exacerbate high output.
- Consult with a dietitian to explore dietary changes that can help manage high output and dehydration.
- Seek advice on specialized products like Ileo-Gel to manage high output and protect the skin around the stoma.
- Consider hospitalization if the situation becomes critical, as it may be necessary to stabilize electrolyte levels and manage high output under medical supervision.
- Explore techniques for changing the appliance, such as using marshmallows, ice cubes, or tampons to temporarily stop output during the process.
- Use skin prep products and ensure the skin is dry before applying the wafer to protect and heal the peristomal skin.
- Consider the expertise of specialists in managing high output ostomies, as they may have more experience and knowledge in dealing with complex cases.

Update from Original Poster
- The original poster was hospitalized for almost 3 months due to severe dehydration and electrolyte imbalance, and is undergoing treatment to stabilize their condition.
- They are receiving vitamin B12 injections to address deficiencies and are on a 2-liter fluid allowance per day.
- The situation is ongoing, and the original poster is scheduled for another hospital visit, indicating that the management of high output from ostomies is a long-term challenge.
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