Topic Explanation
The forum topic is about seeking suggestions for managing high output from ostomies. The original poster has both an ileostomy and a urinary diversion and is experiencing high output from both, leading to dehydration, low sodium and potassium levels, and feeling constantly tired. They are struggling to maintain a good seal for their pouches and are seeking advice on how to manage the high output and its effects on their health.
Advice and Insights
- Consider seeking more specialized medical help, such as a gastroenterologist or ostomy nurse, as GPs may not have sufficient expertise in managing high output from ostomies.
- Explore medications like distilled tincture of opium to help retain fluids and manage output, but be aware of potential dependency.
- Increase intake of fluids rich in electrolytes, such as Gatorade, to help with dehydration and electrolyte imbalance.
- Be persistent in seeking medical help and second opinions until a suitable solution is found.
- Consider adjusting fluid intake and types of liquids consumed to manage output, as certain electrolyte-rich drinks may exacerbate high output.
- Consult with a dietitian to explore dietary changes that can help manage high output and dehydration.
- Seek advice on specialized products like Ileo-Gel to manage high output and protect the skin around the stoma.
- Consider hospitalization if the situation becomes critical, as it may be necessary to stabilize electrolyte levels and manage high output under medical supervision.
- Explore techniques for changing the appliance, such as using marshmallows, ice cubes, or tampons to temporarily stop output during the process.
- Use skin prep products and ensure the skin is dry before applying the wafer to protect and heal the peristomal skin.
- Consider the expertise of specialists in managing high output ostomies, as they may have more experience and knowledge in dealing with complex cases.
Update from Original Poster
- The original poster was hospitalized for almost 3 months due to severe dehydration and electrolyte imbalance, and is undergoing treatment to stabilize their condition.
- They are receiving vitamin B12 injections to address deficiencies and are on a 2-liter fluid allowance per day.
- The situation is ongoing, and the original poster is scheduled for another hospital visit, indicating that the management of high output from ostomies is a long-term challenge.
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