Hi all, this is my first post, so I'm hoping I'm doing it right. I have both an ileostomy and urinary diversion in the form of a colon conduit. I was very ill after both, but the ileostomy was the worst. The peristomal skin had abscesses, cellulitis, C. diff, E. coli, etc. As a result, my stomal skin is still in an awful state. I have high output from both ostomies, with about 3-4 liters on average from my urinary stoma and about 800mls to 1300mls of liquid bowel movements. I use a Convatec two-piece for my ileostomy and a Salts one-piece pouch for the urinary diversion. My skin is raw under the ileostomy. I'm on codeine and Imodium to try to slow down the output. In the meantime, no matter how much I try to get a seal using an Eakin ring and stoma paste on top in a circle around my stoma and then put the two-piece over it, the seal never lasts that long and it's really hard to change as it's so active. I'm on a low residue diet, but at this stage, I hate eating because it stings like crazy. I'm also on restricted fluids, including a liter of water with ten sachets of Dioralyte in it, and then I'm allowed 1 liter of tea, water, etc. a day. I'm so dehydrated in the mornings that I can barely lift my head off the pillow. I put out an average of 2.5 liters overnight. My sodium level is very low, as is my potassium, and my creatinine is high, and I'm putting out a lot more than is going in. I just can't seem to get a happy medium. I'm so tired all the time, and my GP is clueless about these things. The dietitians want to put me on IV fluids overnight, and my surgeons have said I may have to go back into the hospital to get the balance right. I'm sleeping all the time and then wake up with what feels like the worst hangover x 1000. It takes drinking the liter of Dioralyte and my meds and maybe an hour before I get the energy to get out of bed. Does anyone have any suggestions? Sorry for going on so long
![Gray Logo for MeetAnOstoMate](/images/en/logo-short-grey.png?v=5)
Why Join MeetAnOstoMate?
First off, this is a pretty cool site with 35,000 members who truly understand you.
It's not all about ostomy. We talk about everything.
Many come here for advice or to give advice, others have found good friends, and some have even found love. Most importantly, people here are honest and genuinely care.
🛑 Privacy is very important - we have many features that are only visible to members, ensuring a safe and secure environment for you to share and connect.
Create an account and you will be amazed by the warmth of this community.
Advertisement
Hollister
Are you worried about your ostomy's impact on your sex life? The good news is that it may not have any impact at all.
Read our intimacy tips.
Read our intimacy tips.
Advertisement
Hollister
Going into labor and giving birth with a stoma should not be causes for worry. However, there are a few things you should know.
Read our 6 tips to prepare for childbirth with an ostomy.
Read our 6 tips to prepare for childbirth with an ostomy.