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Sep 21, 2011

Colostomy - Improving Quality of Life?

The topic at hand is about living with a colostomy and how it affects one's quality of life. A colostomy is a surgical procedure that creates an opening (stoma) in the abdomen to allow waste to exit the body into a bag, bypassing the colon. This can be a life-changing procedure, and many people wonder if it leads to a better quality of life. Here are some insights and advice from those who have experienced it:

- Many people who have had a colostomy due to conditions like fecal incontinence, prolapse, severe Crohn’s disease, or bowel/bladder cancers find that their quality of life improves significantly. They often describe life with a colostomy as "incomparably better" than dealing with constant pain, accidents, or the threat of cancer.

- The real comparison is not between having a colostomy bag and living a normal life, but between having a colostomy bag and living with disease, disability, or the risk of death.

- Once the stoma is managed, people often find they can walk, work, travel, and eat more normally. Some use irrigation, which involves flushing the colon every 24–48 hours, to gain more freedom and wear a clean, flat pouch most of the day. Changing the pouch becomes just another step in the shower routine.

- Adjusting to life with a colostomy takes time. Emotional readiness before surgery can help, but even those who had emergency operations eventually adapt. There may be some challenges and learning moments with pouching, diet, and stoma care, but many are surprised by their adaptability.

- Lifestyle changes include a generally liberal diet, though everyone discovers their own tolerances. Long baths might be difficult, but showers are fine. Postoperative swelling or hernia bulges can affect how clothes fit, so finding comfortable clothing may require some trial and error.

- Maintaining a positive attitude and focusing on the benefits, such as being alive, continent, and pain-free, are crucial for coping. Some regret not having the surgery sooner, as it could have spared them years of discomfort.

- For cancer patients, the decision often comes down to choosing between a colostomy bag or facing the risk of death or relapse. Those with inflammatory bowel disease weigh ongoing pain against the surgery. One person, who was once near death from Crohn’s, wishes they had undergone surgery three years earlier.

- Some tips and resources include using irrigation for those who qualify and adult diapers as a necessity for incontinence before surgery.

Overall, many people report that after an initial adjustment period, a colostomy leads to a significantly better and more independent life compared to the conditions that necessitated the surgery.
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