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Sep 21, 2011

Should I Reverse My Stoma? Worried about Post-Surgery Outcomes

Deciding whether to go for a stoma reversal or to keep the ostomy is a significant decision. The person in this situation is meeting with their surgeon to explore the possibility of reversing their stoma. Before the bowel perforation that led to their current stoma, they experienced constant urgency and frequent trips to the bathroom, and they worry these symptoms might return if they opt for a reversal. They are unsure if taking that risk is worthwhile.

Here are some points to consider:

1. The surgeon initially assumed the patient would want a reversal, but the patient is still undecided and has several months to think about it.

2. The decision might hinge on how well the stoma can be managed at work.

3. Before the perforation, the patient was advised to perform home colonic irrigation, which resulted in a perforated bowel and a near-fatal situation. They later found out that they should never have been given that advice.

4. The patient feels anxious and conflicted after hearing horror stories about both reversing and keeping the stoma.

Some advice and insights to help with the decision:

- Gather as much information as possible: prepare a comprehensive list of questions for the surgical team before making a decision.

- Ask the medical team to investigate the original cause of the bowel urgency before the stoma; understanding this could help guide the decision about reversal.

- Be aware that some people experience worse symptoms or chronic abdominal burning after a reversal. Weigh the potential quality-of-life improvements against these risks.

- Consider seeking legal advice regarding the improper recommendation to perform unsupervised home colonic irrigation, to help prevent similar harm to others.
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