Living with an ileostomy due to Indeterminate Colitis can be challenging, especially when the stoma is placed high near the belly button. This can affect daily activities and self-confidence. Here are some helpful tips and insights to make life a bit easier:
1. Location & Acceptance
- Having a stoma near the navel is quite common, and many people find they adapt over time.
- Focus on the positive aspects, like feeling healthy again, and consider any sports or activities you can do as a bonus.
2. Swimming & Water Activities
- Plan your swimming sessions for the day you intend to change your appliance, and replace it afterward.
- Use waterproof tape or a spandex body garment under your swimwear to secure the flange.
- Applying baby powder between the pouch and skin can help manage sweat during hot weather.
- Consider wearing tank tops, high-waist trunks, surfer shorts, or skirted bikini bottoms to discreetly cover the pouch. You can also fold or tuck the top of the bag if needed.
3. Sports & Physical Exercise
- The stoma is more durable than it seems, and many people return to sports like rugby, squash, hockey, and more after some adjustment.
- Opt for mid-cut pants instead of low-rise ones to avoid putting pressure on the flange.
4. Clothing & Body Image
- Try mid-cut jeans, larger board shorts, or high-waist clothing to keep the pouch covered while still looking stylish.
- If someone notices your pouch, use it as a chance to educate them, which can help reduce stigma for everyone.
5. General Encouragement
- It takes time to adjust, but many people find they eventually "forget" what life was like before the ostomy.
- Prioritize your quality of life and try not to worry about what others think. A good sense of humor and being open with partners can help boost confidence, even in intimate situations.
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