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Dec 27, 2006

Living with Indeterminate Colitis and an Ileostomy

Topic Explanation:
The discussion revolves around a 42-year-old male named Bruce from Ottawa, Ontario, Canada, who is living with "Indeterminate Colitis" and has an ileostomy. He expresses dissatisfaction with the placement of his ileostomy pouch, which is high on his belly near his belly button, affecting his self-esteem and lifestyle. He mentions the inconvenience it causes in activities like swimming and playing sports, and his concern about the adhesive breaking down quickly when exposed to water. Bruce is also waiting to see if his condition will be definitively diagnosed as Crohn's disease before considering final pouch surgery, as recommended by his surgeon.

Advice and Helpful Insights:
1. Acceptance and Adjustment:
- It's important to accept the ileostomy and find ways to adjust, including choosing appropriate clothing like high waist trunks or shorts for swimming and sports.
- Naming the ileostomy (e.g., "Scarlet") can help in emotionally accepting and integrating it into one's life.

2. Clothing and Appearance:
- Use waterproof tape on the edges of the flange and wear a spandex body undergarment under the bathing suit to secure the ileostomy while swimming.
- Consider wearing mid-cut clothes that fit comfortably over the ileostomy without drawing attention.
- For swimming, plan around the appliance change schedule to manage the adhesive breakdown effectively.

3. Participation in Sports and Activities:
- Engage in sports and activities with some modifications; the stoma is resilient and can withstand physical activity.
- If concerned about the visibility of the ileostomy while swimming, wearing a tank top can help cover it up and reduce self-consciousness.

4. Social Perception and Confidence:
- Embrace the ileostomy openly; societal perceptions are changing as more people undergo similar procedures.
- Focus on personal health and well-being rather than worrying about others' opinions.

5. Managing Physical Discomfort:
- Use baby powder under the pouch to alleviate discomfort caused by sweating.
- If the ileostomy affects swimming, consider dipping feet or going partially into the water to cool down without fully submerging the pouch.

6. Emotional Well-being:
- Stay positive and remember that personal identity and worth are not diminished by having an ileostomy.
- Surround yourself with supportive people who understand or are willing to understand your condition.
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