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Dec 27, 2006

Living with Indeterminate Colitis and an Ileostomy

Living with an ileostomy due to Indeterminate Colitis can be challenging, especially when the stoma is placed high near the belly button. This can affect daily activities and self-confidence. Here are some helpful tips and insights to make life a bit easier:

1. Location & Acceptance
- Having a stoma near the navel is quite common, and many people find they adapt over time.
- Focus on the positive aspects, like feeling healthy again, and consider any sports or activities you can do as a bonus.

2. Swimming & Water Activities
- Plan your swimming sessions for the day you intend to change your appliance, and replace it afterward.
- Use waterproof tape or a spandex body garment under your swimwear to secure the flange.
- Applying baby powder between the pouch and skin can help manage sweat during hot weather.
- Consider wearing tank tops, high-waist trunks, surfer shorts, or skirted bikini bottoms to discreetly cover the pouch. You can also fold or tuck the top of the bag if needed.

3. Sports & Physical Exercise
- The stoma is more durable than it seems, and many people return to sports like rugby, squash, hockey, and more after some adjustment.
- Opt for mid-cut pants instead of low-rise ones to avoid putting pressure on the flange.

4. Clothing & Body Image
- Try mid-cut jeans, larger board shorts, or high-waist clothing to keep the pouch covered while still looking stylish.
- If someone notices your pouch, use it as a chance to educate them, which can help reduce stigma for everyone.

5. General Encouragement
- It takes time to adjust, but many people find they eventually "forget" what life was like before the ostomy.
- Prioritize your quality of life and try not to worry about what others think. A good sense of humor and being open with partners can help boost confidence, even in intimate situations.
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