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Oct 11, 2011

Shoulder Surgery with Ileostomy - Need Advice!

Topic Explanation:
The discussion revolves around individuals with ileostomies who are facing shoulder surgery and are concerned about managing their ostomy care independently while recovering, especially when their mobility and use of one arm might be temporarily impaired. The original poster has had an ileostomy since 1972 and lives alone, expressing concerns about how to empty their ostomy bag post-surgery without assistance.

Advice and Helpful Insights:
1. Adapting to Limited Mobility:
- Learn to use your fingertips to grasp the end of the bag and use the other hand to open and wipe it out. This method involves using one hand primarily for support and the other for action, which might be slower but effective.
- Physical therapy before deciding on surgery can help improve mobility and reduce pain, although it can be quite painful initially.

2. Post-Surgery Experiences:
- Some individuals have managed their ostomy care successfully after shoulder surgery by adapting their movements. Although reaching upwards might still pose a challenge, general mobility for ostomy care can be maintained.
- It's possible to manage even with significant surgeries like rotator cuff repair or knuckle replacements by learning to compensate with the other hand or adapting techniques.

3. Mental Preparation and Support:
- It's crucial to mentally prepare for the changes and challenges post-surgery. Engaging in meditation and having a positive outlook can aid in managing pain and the recovery process.
- Sharing experiences and tips with others who have gone through similar situations can provide practical advice and emotional support.

4. Practical Tips for Daily Activities:
- After shoulder surgery, while you may not be able to lift your arm, you can still use your hand, which should allow enough maneuverability for basic ostomy care.
- Consider all aspects of daily life that might be affected, such as dressing and showering, and plan adaptations for these activities.

5. Healthcare and Monitoring:
- Ensure that during any operation, the medical team is aware of your condition and monitors aspects like hydration, especially if you're on a saline drip, to avoid complications.

By gathering insights from others who have faced similar challenges, individuals can better prepare for their surgery and recovery, ensuring they maintain independence in managing their ostomy.
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