This topic revolves around a person dealing with Crohn’s disease who is considering an elective colectomy to manage their condition and avoid emergency surgery. They have been living with a permanent colostomy for three years after a severe health crisis. Here’s a breakdown of their situation and some advice shared by others:
- The current flare-up is located in the terminal ileum, causing severe pain, frequent bleeding, repeated hospitalizations, and extreme anemia.
- The medications being used include Methotrexate, Sulfasalazine, and Humira (adalimumab), though Humira has not been effective for gut symptoms or joint inflammation.
- There is an upcoming appointment with a gastro-nurse, and there is consideration of stopping Humira.
- The person is exploring the possibility of scheduling an elective colectomy to prevent another emergency surgery.
After the initial post, the person was admitted to the hospital with a high fever, underwent emergency surgery, and is now in remission with an ileostomy. They continue to take Methotrexate and Sulfasalazine, while Humira has been discontinued. They learned that elective surgery could have been an option if the disease had not progressed so far. Emotionally, they are recovering, but medical issues persist.
Here are some pieces of advice and insights shared by others:
1. Dietary and supplement approach: A member shared that a relative manages Crohn’s and systemic lupus with natural supplements when biologics are unaffordable. However, flares return when the supplements are stopped.
2. Reading resource: A book titled “Diet for a Bad Gut” (or “Eating for a Bad Gut”) is recommended for guidance on food choices that may help calm intestinal inflammation.
3. Medication caveats: Be cautious with long-term or frequent use of prednisone, as it can cause severe side effects like weight gain and skin problems.
4. General support: It is sometimes possible to arrange early, planned surgery. It’s important to discuss the option of an elective colectomy thoroughly with gastroenterologists and colorectal surgeons to avoid another emergency situation.
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