Topic Explanation
The forum topic is about seeking advice for dealing with adhesion pain post colostomy surgery. The original poster had colostomy surgery in 2008 due to ulcerative colitis and adhesions from prior surgeries. Despite being told that the barriers used during the surgery should prevent adhesions, the poster still experiences debilitating pelvic pain from adhesions. They are on high levels of slow-release morphine and panadeine forte and are unable to sit for long or travel long distances in a car. The poster also has ulcerative colitis in the rectal stump and is on regular antibiotic treatments to prevent infection. The surgeon is reluctant to operate to extract the affected portion of the bowel due to the risk of adhesions.
Advice and Insights
- Adhesions can cause severe pain and discomfort post colostomy surgery.
- Some members have experienced multiple surgeries and have severe adhesions, leading to chronic pain and disability.
- Medications like Lyrica, Endone, tramadol, Valium, imipramine, buprenorphine patches, and paracetamol are used to manage adhesion pain.
- Adhesions can worsen with each surgery, and stress can exacerbate the pain.
- Seeking advice from a compassionate pain specialist or cancer pain specialist can help in managing adhesion pain.
- Joining support websites or forums dedicated to adhesion-related issues can provide valuable support and information.
- It's important to accept the limitations caused by adhesion pain and seek appropriate pain management.
- Some members have experienced difficulties with sitting and traveling due to adhesion pain.
- It's crucial to be cautious with lifting heavy objects to prevent further complications.
- Some members have found relief from using a TENS machine and massages, although the effectiveness may vary.
- Seeking opinions from multiple doctors regarding the risks and benefits of further surgery is advisable.
- Accepting the reality of living with adhesion pain and finding ways to manage it is essential.
End of Forum Discussion
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