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Mar 02, 2012

Son's Transverse Colostomy Reversal - Seeking Support and Advice

This topic is about supporting a 38-year-old man with developmental disabilities who is undergoing a transverse colostomy reversal after having surgery for Fournier’s Gangrene. His mother is seeking advice and insights to help them prepare for the procedure and recovery. Here are some helpful points gathered from the discussion:

- The surgeon is concerned about the strength of the anal sphincter but is willing to attempt a reversal. If continence is an issue, a permanent colostomy might be considered later.

- The reversal is scheduled, and both mother and son are anxious, looking for information on supplies, pain management, diet, continence training, and recovery expectations.

- Specific questions need to be addressed at the pre-op clinic, and the mother plans to ensure clarity from the surgeon.

- A detailed home-supply list is needed, especially for skin protection products and wipes.

- Concerns about a temporary IV-drug shortage could affect surgery timing or post-op pain management.

- The original plan for an epidural was omitted as the surgeon performed the reversal through the stoma only, avoiding an abdominal incision.

- Post-op care included a pain pump with Hydromorphone and an anti-nauseant. The Foley catheter was removed on the second day, and the diet was advanced after bowel sounds and gas were present.

- The hospital stay lasted five days, with staples removed at home by a community nurse.

- Early home issues included frequent gas, cramping, small bowel movements, and bright-red blood in the toilet, which was resolved with reassurance from the surgeon.

- Dietary adjustments are ongoing, with a need for menu ideas for soft foods and guidance on reintroducing meat, fiber, seeds, etc.

- By the six-week review, the surgeon was pleased with the progress: no incontinence, no hernia, and cleared for activities like bowling and golf, but advised to avoid nuts, popcorn, and foods that might cause obstruction.

- Persistent nighttime back and right-side pain is being treated with muscle relaxants, and "brain-fog" is expected to improve within a year.

Advice and insights from the community include:

- Emotional and practical support is crucial. Faith, hope, and taking things one day at a time are emphasized, along with using forums for encouragement. Caregiver fatigue is normal, so accepting help and resting when possible is important.

- Recommended skin-care and hygiene products include Calmoseptine ointment, Coloplast Critic-Aid Barrier with Antifungal, Anti-Monkey Butt diaper-rash cream, and Sudocrem. Gentle baby wipes are suggested, and it's advised to buy only a small pack of Depends initially.

- Post-reversal routine involves walking and doing deep-breathing and Kegel exercises to strengthen the lungs and pelvic floor. Key hospital milestones include passing gas, return of bowel sounds, advancing diet, and removal of catheter and IV. Cramping and high gas volume are expected for weeks as the bowel wakes up.

- Pain and medication tips suggest that an epidural is useful when a laparotomy is required but may be skipped if the reversal is done through the stoma site only. Hydromorphone pumps or oral Dilaudid can control pain, paired with anti-nauseants. Over time, many manage daytime discomfort with plain Tylenol. For high-frequency stools, some use Lomotil, Opium Tincture, plus fiber to reduce output.

- Diet progression starts with clear liquids, moving to full liquids, then puréed or soft foods like oatmeal, yogurt, custard, and creamed soups. Safe foods include baked or poached fish, skinless chicken breast, eggs, mashed potatoes, and well-cooked pasta. Chewing thoroughly and starting with half-size portions is advised. Gradually test foods, and if cramping or increased frequency occurs, step back. Avoid or delay red meat, pork, raw fibrous vegetables, citrus membranes, seeds, nuts, and popcorn.

- Continence expectations vary, with some experiencing initial nighttime accidents that resolve, while others have none. Regular pelvic-floor exercises and prompt toilet visits help regain control.

- Long-term considerations include occasional abdominal bumps at the stoma site, which are normal scar tissue. A history of radiation damage can affect reversal outcomes. Brain-fog and muscular pain can linger for months, with full recovery taking up to a year.
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