This topic is about managing a colostomy when the ileum is paralyzed, which can lead to bowel obstructions. The person sharing their experience is looking for ways to prevent future obstructions while dealing with limited mobility due to a spinal disability. Here's a summary of their current routine and some advice from others:
- Every evening, they take 20 ml of Lactulose, a sachet of Movicol (a polyethylene-glycol laxative), and 100 ml of pear juice to help stimulate bowel output.
- Due to being wheelchair-bound, physical activity is limited, which can affect bowel movements.
- Their diet is very restricted to avoid blockages. It includes mainly plain meats and limited low-fiber vegetables. They avoid bulbs, pulses, cabbage, onion, garlic, spicy vegetables, nuts, and stone fruits. They only eat simple carbohydrates that are not white and fruit that is peeled, like apples, pears, and some citrus. Small amounts of fatty foods are tolerated.
- They are advised to drink up to 3 liters of water daily, which is also necessary for their supra-pubic catheter.
- Since the last obstruction, their bowel output has been irregular, with stool that is always runny or jelly-like, and they have no sensation of bowel movement.
- They use a large Hollister one-piece pouch, which generally does not leak.
Here are some helpful insights and advice from others:
1. Fluid intake: It's important to drink plenty of water, up to or even more than the advised 3 liters, to help keep the stool moving and prevent blockages.
2. Professional support: Consider consulting a dietitian or a stomal (ostomy) therapist for personalized dietary adjustments and a review of medications.
3. Dietary trial:
- One person with an ileostomy suggests temporarily eliminating all fresh fruits and vegetables to see if reducing roughage improves bowel flow.
- However, it's important to confirm with a dietitian whether some roughage might actually be beneficial for a colostomy before removing it completely.
4. Expectation over time: The frequency of obstructions may decrease as the body adjusts. Monitoring patterns and gradually experimenting with the diet can help identify personal tolerances.
See full discusison