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Aug 22, 2012

Living with a Stoma Due to a Fistula: Seeking Advice and Shared Experiences

Living with a temporary colostomy after dealing with an abscess and fistula can be quite a journey. It all started with sudden, severe anal pain that led to multiple hospital visits. Initially, a general practitioner thought it was just hemorrhoids and prescribed some laxatives and cream. However, the pain got worse, and a visit to a private hospital revealed multiple abscesses. These required drainage, examinations under anesthesia, and the placement of a Seton stitch. When the pain and wounds didn't improve, a temporary colostomy was created about four weeks ago. This has improved the overall quality of life, but there's a desire to connect with others who have had a colostomy for similar reasons.

Here are some helpful insights and advice from others who have been through similar experiences:

1. You’re not alone. Many people have gone through similar experiences with abscesses, Seton stitches, and temporary colostomies. Sharing experiences and progress can be very helpful.

2. Post-op diet and function can improve. Some people find that they can return to a normal diet without major issues once healing stabilizes, so there’s hope for enjoying a variety of foods again.

3. Skin care around the stoma is important. Even if your diet and output are manageable, you might need to try different barrier products and pouching systems to protect the skin around your stoma.

4. Reversal uncertainty is common. Surgeons often wait to give a reversal date until fistulas heal and imaging shows minimal scar tissue. Sometimes, excessive adhesions can make a temporary stoma permanent. Regular follow-ups and open discussions with your colorectal team are crucial.

5. Leaks while traveling or on holiday can happen. Changes in diet or increased activity can lead to more frequent leaks. It might help to carry extra supplies, empty your pouch more often, and try different pouch types or accessory seals to improve wear time.
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