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Aug 15, 2009

Experiences with Delayed Colostomy Takedown Surgery?

This topic is about the experiences of people who have had a delayed colostomy takedown surgery. A colostomy takedown is when a temporary colostomy is reversed, allowing the intestines to function normally again. The original poster had an unexpected temporary colostomy due to a surgical complication and is advised by their surgeon to wait about six months before having the takedown surgery. They are curious about how others have managed with similar delays.

Here are some insights and advice shared by others:

1. Healing Interval
- Many surgeons recommend waiting six months or longer for the takedown because the intestines heal slowly. This extra time helps reduce inflammation and allows scar tissue to mature, increasing the chances of a successful reconnection.
- People have reported waiting times of 3 months, 6 months, and even 9½ months, with positive outcomes at each interval, indicating that success is possible with adequate healing time.

2. Personal Outcome Reports
- One person had a colostomy and hernia repair/takedown 9½ months after the initial surgery. They had staples removed at 2 weeks and sutures at 6 weeks, with most pain coming from the sutures. After removal, they felt great, had regular bowel movements, and expected to return to normal activities like bowling once cleared.
- Another person had a temporary ileostomy closed at 3 months and described the reconnection as "not a big deal."
- Some have had multiple temporary closures and eventually opted for a permanent ileostomy instead of a J-pouch, highlighting the importance of considering all options.
- One patient discovered their entire colon was removed without their knowledge, and a second surgeon later created a J-pouch. This underscores the importance of verifying surgical details and future plans with your medical team.
- Another member waited a year due to a wound near the stoma, which has now healed, and the takedown is planned, showing that unforeseen issues can extend the timeline.

3. Symptom-Management Tips After Takedown
- Mild laxatives can be used briefly to manage postoperative constipation.
- Activia yogurt with added fiber is preferred over laxatives or stool softeners for maintaining regularity.
- Wearing an abdominal binder or girdle can help support the surgical site during early recovery.

4. Where to Find Further Help
- You can post questions in the forum’s dedicated ostomy section, where two specialist nurses monitor it almost daily.
- Visit www.jpouch.org to learn about the pros and cons of living with a J-pouch.
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