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May 27, 2013

Ostomy Reversal Experience and Dealing with Diverticulitis Concerns

This topic is about the journey of recovering from ostomy reversal surgery and the concerns about the possible return of diverticulitis. The person who started the discussion recently had their ostomy reversed and, while relieved that the surgery is behind them, they are worried about diverticulitis coming back. They also encourage everyone to embrace their scars, whether they have an ostomy or not.

Here are some helpful insights and advice shared by others:

1. Diet after reversal can be quite different for everyone. One person, who had a total colectomy and a 3-year diversion, finds that they do best with:
- Low-fiber, high-protein foods
- Mild fish, mashed potatoes, bananas, yogurt, and some ice cream
- They miss raw vegetables and salads and are looking for suggestions.

2. Another person shared that they can eat almost anything after their same-day reversal but mentioned:
- Initial bowel movements might be tough or painful as the pelvic floor and anal muscles need to "re-learn" their function, which improves gradually over time.

3. Accidents and urgency are common early in recovery:
- One individual, six weeks post-reversal, still experiences daily accidents and limits their outings.
- They manage this by taking Metamucil (psyllium) caplets—three pills three times a day plus two more at night—along with Imodium (loperamide) as needed to thicken stool and reduce frequency.

4. General observations about recovery:
- The time it takes to regain normal control varies for everyone and depends on factors like the length of diversion, how much of the colon or rectum was removed, and any radiation damage.
- Pelvic floor muscles might "forget" their function after a long diversion (e.g., 16 months) and need retraining through regular use and possibly pelvic-floor exercises.
- Improvement is expected, but patience is key; it's normal to worry about whether things will return to normal.

5. Some questions for future discussion include the effectiveness of probiotics after reversal, especially when diarrhea is the issue rather than constipation, and why the colon takes time to get back to normal processing.

Products mentioned in the discussion include Metamucil (a psyllium fiber supplement) and Imodium (an anti-diarrheal medication).
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