If anyone is around, wanting to meet up, connect here with a time and place. The hotel is beautiful. There are 2 or 3 eating places.
Give us a shout.
warrior
Aug 14, 2025 12:36 am
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Posted by: ejbetty
Geekyjen,
Thanks for the reply. I will be seeing my doctor on Friday and mention Entyvio. I did not remain paralyzed for more than 2 days, but it was terrible and I was so scared. The doctors just used alot of xanax and other drugs like that to UN paralyze my joints that were being attacked by the remicade. Turns out I have been diagnosed with LUPUS. It is attacking my nervous system. I had ulcerative colitis in 1996 and they had to remove my colon. Had a J pouch for 10 years, until it started failing. I then got a permanent iliosomy, and I suffer from severe chronic diareha, and I dehydrate frequently. I recently had a proctectomy, and that is when the new autoimmune disorder, Lupus, appeared. I have had two hospital stays now because of the blisters and the paralyzing incident. I will be dealing with this forever now. I have just been working on acceptance.
I love this website because of wonderful people like you!
Betty
Justbreathe
Aug 14, 2025 9:03 pm
Hey Warrior
Have fun and remember my favorite Florida saying
“Don't let the heat hit ya'
Where your shit bag fits ya!
😆jb
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Hollister
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warrior
Aug 14, 2025 10:50 pm
Thanks, all. Yeah, it's definitely hot down here. 🥵 Thankfully, the hotel is fully chilled.
For those who said they are coming here, the reception is tonight at 7:30. There will be 3 of us attending so far. Anyone else?
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Night owl
Aug 15, 2025 2:19 pm
I've been around... I will be at the exhibit hall around 11 and for lunch, then a few afternoon sessions!
gracyeb1
Aug 16, 2025 3:26 pm
Just logged in... Where in Orlando is the convention? Can I go talk to the appliance/wafer distributors/mfg as to how to get this convect to fit?
Not complaining, just want relief.
gracyeb1
Aug 16, 2025 3:34 pm
Hi, where is the exhibition hall and how long are the hours? Is it open on Sunday, the 17th of Aug 2025?
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Night owl
Aug 16, 2025 11:53 pm
Convention was Thursday to Saturday; the last part is tonight. There were stoma clinics with appointments available those three days, and the exhibit hall was open several hours the past few days. I'm sorry you weren't able to locate the information earlier. Registration and everything was available with it. Hopefully, you did figure it out and get some assistance.