This topic is about a 31-year-old individual who has been living with type-1 diabetes for 19 years and is now facing new challenges after developing a colostomy due to complications from diabetes and renal issues. They are dealing with fears, hopes for a reversal, and are seeking shared experiences from others in similar situations. Here are some insights and advice that might be helpful:
1. Acceptance & Mental Adjustment
- Try to embrace the ostomy as a part of yourself, at least for the time being. Rejecting it can make both emotional and physical recovery more difficult.
- Sharing your story and writing about your experiences can be very therapeutic. Many people have been in similar situations and felt overwhelmed at first.
2. Educate Yourself & Use Available Resources
- Watch tutorials from manufacturers and use their toll-free helplines for support. Some people find videos and the 800-number from their pouch vendor very helpful.
- Explore products from companies like Hollister and request free samples. Other major manufacturers may also provide limited samples upon request.
- A good online resource for information, peer support, and local support group listings is www.ostomy.org.
3. Seek Competent, Ongoing Clinical Support
- Hospital WOC (ostomy) nurses can be incredibly helpful. Home-health nurses might not have the same level of expertise, so ask your surgeon to connect you with a knowledgeable provider.
- Consider getting second or third opinions about the timing and feasibility of a reversal. Make sure you understand the clinical markers that need to be met before it is safe to proceed.
4. Practice, Practice, Practice
- The early weeks can be challenging with leaks and surprises, but with diligence and repetition, confidence will grow.
- It's normal to feel anxious about traveling. Planning, learning how to change equipment, and obtaining travel insurance can help you resume trips. Some people even manage to go on overseas vacations.
5. Timing & Risk-Benefit Thinking About Reversal
- Many suggest waiting the full 6–12 months before making a final decision about reversal. By then, output usually stabilizes, and daily life feels more normal.
- Understand that reversal can fail, so weigh the potential complications against your current quality of life.
- For example, a person with Crohn’s disease chose to keep their stoma permanently to avoid disease flare-ups and further surgery.
6. Holistic Support
- Combine medical care, peer groups, personal determination, and, if you wish, prayer or spiritual support to help navigate this journey.
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