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Sep 24, 2013

Ileostomy leaking - is this normal?

This topic is about dealing with early leakage issues when you have a new ileostomy. It's a common concern for many who are adjusting to life with an ostomy, and it can be both physically and emotionally challenging. Here are some helpful insights and advice to manage and reduce leaks:

1. Early leaks are quite normal. Many people experience them in the first weeks or months as they learn how to properly apply their pouch and as their stoma size stabilizes. With patience and practice, these incidents usually become rare.

2. Treat each leak as a learning opportunity. Pay attention to when and where the leak happens and what you were doing at the time. Check the underside of the flange and the skin around the stoma to identify the exact point of failure. Consider factors like pressure from a seat belt, underwear, body position, or any dips in the skin around the stoma.

3. For skin preparation:
- Use a non-moisturizing soap like Ivory, rinse thoroughly, and avoid lotions.
- Make sure the skin is completely dry using a paper towel or a hair-dryer on low heat.

4. For application technique:
- Regularly measure your stoma, as it may shrink after surgery. Cut the opening in the pouch to fit snugly, and some people find it helpful to cut it slightly smaller for a tighter seal.
- Press the flange firmly all around, applying warmth with your hands or a hair-dryer to improve adhesion.

5. To extend wear time, try blow-drying the barrier after showering while pressing it down. This can help a barrier seal last up to 7 days between changes.

6. If your skin is uneven or prone to leakage, consider using barrier products:
- Eakin Cohesive seals or rings.
- Salts Secuplast Hydro Aloe Vera strips for frequent leak points.
- Salts Dermacol Stoma Collar, ensuring you choose the correct size with a sizing chart.

7. Explore different appliances and accessories:
- Salts Healthcare one-piece pouches with a flexible flange that moves with your body.
- Hollister pouching system #8524, which includes side hooks for an elastic belt to hold the flange firmly and prevent leaks.

8. Utilize general resources like the "Ostomy Tips" section on relevant websites and seek ongoing help from a WOCN or stoma nurse. Don't hesitate to request samples of alternative products.

9. Remember that emotional support is important. Leaks can be frustrating and embarrassing, but they usually improve over time. Give yourself the grace to adjust, and know that many others have successfully navigated this learning curve.
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