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Jan 05, 2014

Shoulder Surgery and Ostomy - Need Help Managing Both!

This topic is about managing a continent ostomy when you have to undergo shoulder surgery that will leave one of your arms immobilized. A continent ostomy requires both hands for intubation and irrigation, which can be challenging when one arm is out of commission. Here are some helpful tips and advice to navigate this situation:

1. Consider assistive devices:
- Reach out to an engineering department or a rehabilitation-engineering lab at a nearby university. Explain your current method of using both hands and ask if they can design a stand or clamping device to help hold the catheter in place, allowing you to use your mobile arm or body movement for the procedure.

2. Train a helper in advance:
- Find a trusted family member or friend and teach them how to care for your ostomy step-by-step before your surgery. This way, they can assist you during the time your arm is immobilized.

3. Engage specialized clinical support early:
- Schedule a pre-op consultation with a certified wound-ostomy-continence nurse (CWOCN) at the hospital or through a home-health agency. Make sure the surgical team is aware of your unique ostomy care needs.
- If your local hospital lacks experience with continent ostomies, consider consulting with a regional center that has CWOCNs and experience with such diversions, either virtually or in person.

4. Plan for home-health services:
- Before your hospital admission, set up a case with a home-health agency that employs ostomy nurses. Request post-discharge visits for hands-on assistance until you regain full use of your shoulder.

5. Bring your own supplies and written instructions:
- Pack all necessary catheters, irrigation equipment, lubricants, and any specialty items. Include clear, printed instructions for hospital staff who may not be familiar with continent ostomies.

6. Advocate in the hospital:
- Upon admission, inform every shift’s nurse about your ostomy type and mobility restriction. Request that staff assist with intubation/irrigation if a trained helper is not available.

7. Seek the highest-quality care, even if it means traveling:
- Don’t limit yourself to the nearest facility. The success of your shoulder surgery and proper ostomy management might depend on the expertise available outside your local area.
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