This topic is about adjusting to life with a permanent ileostomy after undergoing surgery for collagenous colitis. The person sharing their experience had a total proctectomy due to severe symptoms from this autoimmune condition, which included frequent bathroom trips, pain, and malnutrition. After surgery, they faced several challenges, including finding a suitable pouching system and dealing with post-operative complications. Here are some insights and advice for anyone in a similar situation:

1. It's normal to experience a range of emotions such as anxiety, depression, PTSD, anger, and frustration after undergoing major bowel surgery. Recognizing these feelings can help you understand that you're not alone in your experience.

2. People who haven't lived with a stoma, including some medical professionals, might not fully grasp the impact it has on your life. Their comments might seem dismissive, even if they mean well. Connecting with others who have ostomies can provide genuine empathy and practical advice.

3. Peer support is invaluable. Engaging with a community of people who share similar experiences can help reduce feelings of isolation. Sharing both your struggles and successes with others can be incredibly supportive and uplifting.