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Feb 10, 2014

New to Ileostomy, Seeking Advice on Coping and Work

Coping with a new ileostomy or colostomy at work can be challenging, especially when you're worried about things like noise, odor, and leaks. It's natural to feel anxious about returning to a job that involves close contact with coworkers, especially if you're also dealing with depression. Here are some practical tips and insights to help you manage these concerns and regain your confidence:

1. Try different products: Many manufacturers offer free samples of various pouching systems, wafers, and accessories. This can help you find the best fit and seal for your needs.

2. Protect your skin: Use skin barrier wipes at every change to help with adhesion and prevent irritation. If you have sore or bleeding areas, stoma powder can be helpful.

3. Control odor and gas:
- Use pouch deodorants like Na’scent or M9 with each emptying or every other time.
- Look for pouches and accessories that filter gas and muffle sound.

4. Physical protection and concealment: An ostomy guard can flatten the bag under your clothing, protect the stoma, and reduce noise, which is especially useful when wearing a suit or being active.

5. Reliable one-piece option: Consider using Convatec one-piece pouches with barrier wipes, paste for skin creases, and waterproof strips around the wafer. These can last about three days and are suitable for activities like swimming and sports.

6. Establish a routine and keep supplies handy:
- Many people change their wafer/bag every three days, but find what works best for your skin and lifestyle.
- Carry an emergency kit with a spare pouch, barrier wipes, paste, waterproof tape, and a full change of clothes.

7. Handle leaks and noise: Keep waterproof tape for quick repairs. If your stoma makes noise in public, you can often pass it off as a "stomach growl" to ease any embarrassment.

8. Monitor your diet: Keep a food diary to identify foods that increase gas or output. Eat slowly, chew well, and drink plenty of fluids. Some people find it helpful to limit raw vegetables initially.

9. Stay active and safe: You can return to most work and recreational activities. Just avoid heavy straining, ensure your pouch is well-sealed, stay hydrated, and follow medical advice.

10. Maintain hygiene: Regular showers without the pouch can help control odor, and water will not harm the stoma.

11. Seek emotional support and information: Joining a local ostomy support group or exploring online resources can provide valuable education and a sense of community.

12. Keep perspective: Over time, managing your pouch will become routine. Most people experience rare issues and can fully return to work and social life once they find the right products and habits.
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