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Feb 11, 2014

Need Advice & Reassurance for Upcoming Ileostomy Surgery

This topic is about someone who is feeling quite anxious and scared as they prepare for their upcoming ileostomy surgery, which is scheduled for March 4th. They are looking for some comforting words and practical advice from those who have already gone through the experience of living with a stoma.

Here are some helpful insights and advice shared by others:

1. It's completely normal to feel a mix of emotions like fear, nervousness, and even anger. Many people find that these feelings ease once they become more familiar with their new situation.

2. The surgery can be both life-saving and life-improving. Many people report feeling healthier after the operation and wouldn't choose to go back, even if they had the option for a reversal.

3. Keeping a positive attitude, allowing yourself time to grieve any old expectations, and reading reliable forums or websites can help manage anxiety.

4. Concerns about appliance leaks are common, but they are not inevitable:
- Many people experience rare or only minor leaks, sometimes as infrequently as once a year. Often, issues are due to user error rather than equipment failure.
- Learning about your personal stoma patterns and proper fitting techniques can greatly reduce the risk of leaks.

5. Here are some practical tips for early recovery and daily care:
- Expect some abdominal tenderness for a few weeks, so be gentle when moving and cleaning.
- Use smooth cotton cloths, like old T-shirts, instead of toweling face cloths to avoid snagging the stoma while showering.
- Once initial healing is complete, routine maintenance often takes less time than other daily tasks, such as inserting contact lenses.

6. You can still enjoy a normal diet and social life. For example, one person enjoyed spicy Chinese food without any issues and is planning to try wine next.

7. Community support is invaluable. Online forums and local stoma nurses, often referred to as "Stoma sisters," can provide ongoing help for any questions, venting, or reassurance you might need.
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