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May 18, 2014

Need help with managing my colostomy - work, pancaking, pain, and blockages

This topic is about living with a right-sided sigmoid colostomy, affectionately named "Rosie," and finding practical ways to manage daily life, especially while working. The person has been dealing with this for six months and is looking for advice on several issues, including working with a stoma, dealing with pancaking, managing painful swelling, and preventing food blockages. Here are some helpful strategies and insights shared by others:

1. Always have a full change of appliance and supplies with you at work or when you're out and about.

2. Reducing pancaking:
- Try the "Pam trick" by misting the inside of the pouch with non-stick cooking spray to help the output slide down.
- Use commercial pouch lubricants like Hollister Adapt or Coloplast Brava.
- After applying lubricant, rub the pouch sides together to coat it well, especially at the top.
- Keep some air in the pouch to prevent it from vacuum-sealing, and stay hydrated to soften stool.

3. Coping with painful stoma swelling:
- Ensure the wafer opening is the right size and not too tight.
- Keep a record of when swelling happens and what you ate, then discuss it with your surgeon or nurse, as it might indicate a partial blockage or hernia.

4. Diet and preventing blockages:
- Maintain a detailed food diary to identify patterns.
- Eat smaller, lighter, and more frequent meals, especially on workdays.
- Chew food thoroughly and avoid large bites.
- Drink about 2 liters of water daily to help soften stool.
- Identify and avoid personal trigger foods like bread, pasta, and high-fiber items.
- Some find that string green beans or pineapple help with easier output.
- A sample work-day menu includes coffee with lactose-free milk, toast with olive oil or sugar-free jam, chamomile tea with half a ripe apple, and blended vegetables with lean meat or fish.
- Consider commercial nutrition drinks or homemade smoothies for a quick, light meal before work.

5. Handling an impending blockage:
- Try a warm bath, walking, or gentle abdominal massage.
- If there's no output, a measured dose of Milk of Magnesia might help, but consult your doctor first.
- Seek immediate medical help if you experience persistent pain, vomiting, or no output.

6. Resources and professional help:
- Stay in touch with an ET/WOC nurse for appliance and skin-care advice.
- Explore online resources and community forums for more tips and support.

7. Clothing and workplace comfort:
- Wear stretchable garments, loose dresses, or elastic-waist trousers to reduce pressure on the pouch.
- Ensure you have discreet bathroom access and storage for supplies at work, and consider self-employment if necessary.

8. Perspective and encouragement:
- Remember that the colostomy is a life-saving measure, and challenges like pancaking and diet adjustments are manageable with routine and experimentation.
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