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Oct 12, 2009

Successful First Step in My Reversal Surgery Journey

This topic is about a person who has been living with an ostomy and recently underwent surgery to repair a hernia and create a J-pouch. This is a step towards eventually reversing the ostomy. Here’s a bit more about their journey and some advice for others in similar situations:

- The person had been managing well with an ostomy but had to seek emergency care when a hernia trapped the bowel. This led to a successful surgery where the hernia was repaired, and a temporary loop ileostomy with a J-pouch was created. They are now recovering at home and looking forward to the final surgery that will allow them to pass stool normally again.

- The surgeon expects the J-pouch to function by emptying 4 to 6 times a day, sometimes up to 8, depending on diet and intake. Since the colon has been removed, the stool will remain loose, ranging from watery to oatmeal-like consistency.

- It’s important to set realistic goals. Being able to pass stool through the rectum again is a significant achievement, even if the function isn’t perfect.

Here are some helpful insights and advice:

1. Many people find hope in hearing success stories, so sharing updates can be encouraging for others considering a reversal.

2. Some surgeons mention that the reversal surgery, often called a "takedown," is usually easier than the initial surgery for cancer or colon issues.

3. Maintaining a positive attitude and connecting with supportive communities can be crucial for emotional healing. Many find forums to be a vital source of support.

4. Be proactive about your health:
- Ask your surgeon for realistic expectations about post-reversal function and potential complications.
- Understand that a permanent ostomy can be a reliable and pain-free option if a reversal doesn’t promise satisfactory results.

5. If undergoing chemotherapy before the reversal, keep your immune system strong. Some surgeons prefer to wait until after the final chemo session before scheduling the takedown, so it’s important to confirm the timing with your surgical team.
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