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Aug 01, 2014

Seeking advice on ileostomy reversal after radiation damage

This topic revolves around the challenges faced by someone who developed severe radiation damage after undergoing pelvic radiotherapy for womb cancer. This led to the creation of a temporary ileostomy due to complications. The person is now considering whether a second reversal surgery could be safe and is seeking advice and support. Here are some insights and advice shared by others:

- Emotional support is crucial. Many people find it difficult to accept life with a stoma initially, but coping can improve over time. Techniques like using humor, practicing "mind control," and avoiding mirrors can help manage negative feelings.

- Seeking second opinions is highly recommended. If past experiences with medical teams have been unsatisfactory, finding new, more experienced surgeons and hospitals might provide better options and outcomes.

- It's important to carefully assess the risks and benefits of a second reversal. Experiences vary widely, with some people having excellent results and others facing significant complications. Weighing the surgical risks against the current quality of life is essential.

- Shifting perspective can be beneficial. One person suggested focusing on gratitude for survival and engaging in normal activities, such as wearing usual clothes and discreetly managing the stoma, to help reduce the psychological burden.

The individual is actively looking for a specialized colorectal and vascular team outside their local area to assess their complex case, with a colonoscopy/ileoscopy scheduled to evaluate the possibility of another reversal.
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