Color Logo for MeetAnOstoMate
Sponsored by Hollister
Login   |  
Forgot password?
 
Forum
Videos
Reviews
About Us
Color Logo for MeetAnOstoMate
Where Everybody Understands You
41,403 members
Dec 06, 2014

Struggling with Ileostomy Reversal - Seeking Support and Advice

This topic is about someone who recently had an ileostomy reversal and is finding it more challenging than expected. They are seeking support and advice from others who have gone through similar experiences. Here are some helpful insights and advice shared by others:

- Be prepared for a long adjustment period. Many people find the first 1-2 years after reversal to be the most difficult, but improvements in frequency, urgency, and pain can continue over time.

- The frequency of bowel movements can vary greatly, from 3 to over 15 times a day. It’s important to be patient and experiment with diet, fiber, and medication to find what works best for you.

- When it comes to diet and fiber management:
- Start with a low-fiber diet to reduce output and avoid blockages, as your body needs time to heal.
- Chew your food thoroughly and limit foods that are hard to digest, like corn and raw vegetables, to prevent obstructions.
- Small doses of Metamucil can help firm up output without causing blockages, but too much can have the opposite effect.

- For controlling diarrhea and urgency, medications like Imodium or Lomotil can be used as needed, especially on days with high output.

- Take care of your perianal skin by using barrier or diaper-rash creams to soothe irritation from frequent wiping.

- Be aware of the risk of small-bowel obstructions due to scar tissue, which can cause blockages months after surgery. Seek urgent medical attention if you experience persistent cramps, vomiting, or an inability to pass gas.

- If you have continence issues, consider requesting pelvic floor testing to check sphincter function. Biofeedback or further surgery might be helpful.

- Surgical outcomes can vary depending on the underlying disease. For example, those with diverticulitis often have better outcomes than those with cancer or inflammatory bowel disease. Consulting an experienced colorectal surgeon can improve results, and getting a second opinion is encouraged.

- Some people opt for a permanent ileostomy to avoid repeated operations, pouchitis, or ongoing accidents. While the main drawback is cosmetic, many find the lifestyle freedom, such as the ability to travel and exercise without worry, to be a significant advantage.

- Engage with support forums, ask questions, and remember that every case is unique. Many people eventually find a routine that works for them, while others decide that a permanent ostomy is the best option for their lifestyle.
See full discusison
Gray Logo for MeetAnOstoMate
MeetAnOstoMate.org

MeetAnOstoMate is a remarkable community of 41,403 members.

“Every morning with my coffee, I read here and feel wrapped in warmth - I hardly post, but it still feels like family.”

“Our oncologist literally wrote down the link; they said more patients need this website.”

“This place pulled me out of the dark. I went from lurking to living again.”

“At 3am, someone’s awake somewhere in the world. I’m never alone here.”

Join Free

Popular Topics

Hello
First Solo Bag Change and Embracing My New Body
David Letterman's Top 10
Ostomy Day
Hello friends!
Early Christmas Giggle
Three Weeks Back at Work.
Not much to tell really.
Let’s see them
Friendship/relationship

New Topics

*Magic LOve Spells 📞 @ +27762248449in San IgnaciO, BELIZE.*& Marriage spells, BRING BACK LOST LOVE 1OO%, VOODOO, PSYCHIC READING,** SPELL CASTER, MARRIAGE SPELLS, BLACK MAGIC$ GURU HEALER
Not much to tell really.
Late summer
Big Milestone
Waking Up with Stomach Ache Due to Stoma Bag
Spinal Surgery Update!!
Hello New Friends!
Time Flies
Emptying the Pouch: Best Positions?
Thanksgiving
About us | Privacy policy | Terms of use | Ostomy Blogs | Ostomy Q&A | Guides | Contact Us
This site is protected by reCAPTCHA and Google Privacy Policy and Google Terms of Service apply.
Copyright (c) MeetAnOstoMate.org All Rights Reserved
Create Account
Login
↑