This topic is about someone who recently had an ileostomy reversal and is finding it more challenging than expected. They are seeking support and advice from others who have gone through similar experiences. Here are some helpful insights and advice shared by others:
- Be prepared for a long adjustment period. Many people find the first 1-2 years after reversal to be the most difficult, but improvements in frequency, urgency, and pain can continue over time.
- The frequency of bowel movements can vary greatly, from 3 to over 15 times a day. It’s important to be patient and experiment with diet, fiber, and medication to find what works best for you.
- When it comes to diet and fiber management:
- Start with a low-fiber diet to reduce output and avoid blockages, as your body needs time to heal.
- Chew your food thoroughly and limit foods that are hard to digest, like corn and raw vegetables, to prevent obstructions.
- Small doses of Metamucil can help firm up output without causing blockages, but too much can have the opposite effect.
- For controlling diarrhea and urgency, medications like Imodium or Lomotil can be used as needed, especially on days with high output.
- Take care of your perianal skin by using barrier or diaper-rash creams to soothe irritation from frequent wiping.
- Be aware of the risk of small-bowel obstructions due to scar tissue, which can cause blockages months after surgery. Seek urgent medical attention if you experience persistent cramps, vomiting, or an inability to pass gas.
- If you have continence issues, consider requesting pelvic floor testing to check sphincter function. Biofeedback or further surgery might be helpful.
- Surgical outcomes can vary depending on the underlying disease. For example, those with diverticulitis often have better outcomes than those with cancer or inflammatory bowel disease. Consulting an experienced colorectal surgeon can improve results, and getting a second opinion is encouraged.
- Some people opt for a permanent ileostomy to avoid repeated operations, pouchitis, or ongoing accidents. While the main drawback is cosmetic, many find the lifestyle freedom, such as the ability to travel and exercise without worry, to be a significant advantage.
- Engage with support forums, ask questions, and remember that every case is unique. Many people eventually find a routine that works for them, while others decide that a permanent ostomy is the best option for their lifestyle.
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