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Feb 02, 2015

Ileostomy Complications: Seeking Advice on Neurogenic Small Bowel Issues

This topic is about a person with an ileostomy who is dealing with a challenging condition called neurogenic small-bowel "pseudo-obstruction." This condition mimics a blockage in the intestines but is not caused by a physical obstruction like scar tissue. The person is currently in the hospital and doctors are considering whether an ileostomy revision or short-term TPN (intravenous nutrition) might help. They have experienced this issue before and had to rely on TPN for a year, which led to serious infections. They are now looking for advice from others who might have faced similar issues.

Here are some helpful insights and advice:

1. Since neurogenic small-bowel pseudo-obstructions are rare, it might be beneficial to reach out to specialized forums, such as those focused on spinal cord injuries and neuro-gastroenterology. The community at sci.rutgers.edu could be a good place to find people with more specific experience.

2. Members of the community have expressed their support and well wishes for the person as they undergo further tests and make treatment decisions, even though they may not have direct experience with this condition.
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