Ileostomy Complications: Seeking Advice on Neurogenic Small Bowel Issues

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MARYLANDGAL
Feb 02, 2015 3:43 pm

Help, Anyone have one or several what are called sudo obstructions do to Neurogenic small bowel?

I am currently in the hospital again at Hopkins and have a great team ( this is very important as I was rushed to a hospital that did not know me or my problems. This is the fourth or fifth time this has happened and the first C-T at the other hospital did not show an obvious obstruction (scar tissue) My doctor now thinks it may need a revision, then TPN (I.V. Nutrition) for a short time compared to last time I had what is call neurogenic small bowel and needed to be on TPN for a year and had multiple episodes of sepsis which almost killed me. If there is anyone out there with this problem or even had them, please respond to me asap. as I go for yet more test today and will know what will happe?

Thanks for any insight 

Marylandgal
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iMacG5
Feb 22, 2015 8:30 pm

Hey Marylandgal, sorry you didn't get any replies.  I think your situation might be somewhat special and there are other sites with folks very familiar with your needs.  One that comes to mind is sci.rutgers.edu.  Give it a shot and I think you'll get lots of help.

Respectfully,

Mike

Immarsh

Hi All, If you have an " old" or recent ostomy, this is the place for you. I think I've been a member for more than 15 years, but I have had my surgery, since I was a kid of 15 ( do the math-that's more than 60 years ago). As a teen, with a new ostomy ( for Ulcerative colitis) my parents dragged me off to my first ostomy association meeting. I wasn't happy, but in the long run, it's the best thing that happened to me. I met others, older, and teens like me, adjusting to the changes. A group of us started a Young adult group, and helped each other, and even visited kids who were new to the world of ostomies. But soon I married, and moved out of state, and although made some connections with other NJ ostomates, I became pretty much isolated. Until I discovered MaO. By then, I was having a myriad of other medical issues, and my aging stoma " wasn't doing well". I received a lot of help and support from members! I was pleased that I was also back to supporting others. I met a gal on line (from Papua New Guinea) who was trying to help ostomates in her country. There is a scarcity of supplies in some other countries, and unlike the US, insurance to pay for supplies isn't available. When my son followed his "love" twenty years ago, and moved to Australia I took advantage of an opportunity to help other ostomates. On one of my first visits to Oz, I brought a suitcase full of Ostomy supplies, handed them off to an Ostomy assoc. On the Gold Coast, who then had a friend take them to PNG. They were grateful for the help, and Janet and I still write.. This is the place to be, if you need help, and it also gives you the opportunity to provide help and support to others. Feel free to write, if you'd like to chat, about things ostomy, or life in general. Best REgards to all.. Marsha

LadyHope
Mar 03, 2015 2:49 am

Hi MarylandGal,

I just saw your post and wanted to respond.  I hope that all of your tests go well and the docs are able to help you right away.  Sadly, I don't know anything about neurogenic small bowel except what is posted on google.  Take care and I hope everything resolves very quickly for you.  LH