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Feb 04, 2015

Advice for Dealing with RVF Issues?

Living with a rectovaginal fistula (RVF) can be a challenging experience, especially after undergoing multiple surgeries and having a temporary ostomy. This condition involves an abnormal connection between the rectum and vagina, which can significantly impact daily life and future plans. Here are some insights and advice that might be helpful:

1. Understanding RVF: RVF stands for Recto-Vaginal Fistula, a condition that can cause discomfort and complications.

2. Surgical Intervals: It's common for surgeons to recommend waiting at least three months between RVF procedures. Having five operations in six months is unusual and might need further evaluation.

3. Finding the Right Specialist: It can take time to find a colorectal or pelvic-floor surgeon with experience in complex RVF repairs. Misdiagnosis is not uncommon, so it's important to advocate for yourself and seek multiple opinions if necessary.

4. Considering Ostomy Options: In severe or recurrent cases, a temporary or permanent ostomy might be necessary. Sometimes, a colostomy is reversed, and an ileostomy is created if the fistula and initial reconnection overlap.

5. Managing Post-Operative Symptoms: Even after a "successful" closure, symptoms like pelvic spasms can persist. Pain relief options such as opioids or targeted pelvic-nerve blocks might provide some relief.

6. Healing Takes Time: The body may need a significant amount of time to fully heal and recognize that the fistula is gone. While complete resolution of pain and pressure isn't guaranteed, gradual improvement is possible.

7. Seeking Peer Support: Connecting with others who have experienced similar challenges can be invaluable. Many are willing to share their personal journeys and offer support.

Navigating life with a rectovaginal fistula can be tough, but understanding the condition and seeking the right support can make a significant difference.
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